Home


About


William


Ivy and Noah


Pemphigus


Donate Blood


Dear Donor


Reviews by Tiff

Subscribe Follow me on Twitter

watch this space
Archives
Categories

Posts Tagged ‘Loss of a baby’

Behind.

“Mum, is today William’s angel day”, she asks me

“Yep” I answer and wonder what will come next

but nothing does.

No questions because she knows everything she needs to,

just acceptance that once,

before her time,

there was a brother who didn’t live

and earned his wings when he was only five days old.

It’s early and it’s light

but there is no sun this morning -

not yet.

I don’t know if it will come.

Everything is covered in grey hues and cloud

as if to hide this day.

Blue balloons and a song were all we had left to remember him

but we don’t even have that this year.

Nine years ago food tasted like soap in my mouth

and  the days had blurred into this one terrible moment where we would sign papers

and switch off machines

so that our baby could be released from tubes and tapes and wires that

in the end did nothing

but prevent a mother from holding her son and loving him as best she could

in the time they had left together.

My heart hurts this morning

and I am short and impatient with the others

because it feels like it’s only mine that wants to stop and remember now.

The world keeps turning -

just as it did nine years ago

when a small boy with a fuzzy down of hair,

a broken heart

and hands just like his Dad’s

left his life behind him

and left me behind too.

I will always love him

and

I will never forget him

no matter how many years pass.

 

 

 

 

and for a few moments he was just Will.

 

The day before Will died

we dressed him in white

and promised him to a god I was uncertain existed.

Still, the thought of him leaving this earth unchristened was too much to shoulder

so the nurses dressed him in satin and lace -

a donated gown for occasions such as this.

The beauty of him broke my heart.

I needed him to belong to someone -

if not to me

then someone (anyone, please, don’t let him be alone wherever it is he was going)

so I promised him away to the universe.

He opened his eyes, when the doctors said he wouldn’t.

He stared right at me

straight into me

and for all the world I wanted to pick him up and hold him.

Instead I asked my husband and my friends the impossible.

I asked it of my family too.

I asked them not to give up on him

even though I already had.

I feel so sad when I think of that moment -

hope and heartbreak all rolled into one sliver of time.

The next morning we dressed him in blue denim overalls and a blue striped shirt

and turned off all of the machines that were keeping his tiny, damaged heart beating.

We held him between us, David and I

and for a few moments he was just Will.

Beautiful and whole

but he didn’t open his eyes even though I wanted it more than anything else.

Even though I begged the uncertain god.

Even though I wished it.

I wonder if he felt us,

our heat,

our love.

Surely, a brain functions at a basic level right up until the very last moment

and touch

and warmth are  so primal,

so instinctual.

I tell myself that he knew  -

that he didn’t die alone.

When the photos came back to us

every photo of Will that was taken during our mother-father-baby union

had a distinct green – yellow aura.

The colours of healing and freedom,

the colours of release.

My father cussed and rolled his eyes

telling me it was a glitch in the camera

and that I was being illogical

but I knew that was his spirit letting go

and his way of telling me that he felt that we were with him

and that we would all be okay in the end.

 

October 9th – 15th is remembrance week for all babies lost to miscarriage, stillbirth and neonatal death.

Lighting a candle, continuing the wave of light, for all of the angels

and remembering my own.

 

Just.

A courtyard is just a courtyard until you’ve sat in one

waiting for your baby to draw his last breath.

You never do look at them the same.

A signature is just that until you consent for your baby to be allowed to die.

After that, every one feels as though you are signing something away.

Memories swirl and mysteriously imprint,

often at times when you least expect them.

They leave scars on your heart that will never heal

so love grows around them -

finds new pathways.

You see beauty where there is none

and seek belief in things that you would never have believed in

before.

Butterflies

white feathers

signs that an afterlife exists.

How different life would have been, had he have lived, whole.

I am different because he didn’t.

Softer, more accepting that we are not invincible somehow

because he wasn’t

because he lost his fight to be here

because I need him still, 

seek him out in my dreams.

I am stronger and yet I’m not.

I didn’t think that I would survive him,

yet here I am.

No matter how often I wish it was he who was gifted life

instead of me

I cannot make it so.

Acceptance is both imprisoning and freeing at once

and memories become your everything.

Its okay to miss a ghost, isn’t it?

A song is just a song until you choose it for your son’s angel day

and then you can never sing it without thinking of him,

without the long grizzly tears of motherhood lost leaking from your soul.

A blue balloon can never be released again

without remembering

without wishing for something that will always be out of reach.

Cellophane butterflies.

In hospital there are no butterflies

and so the girl and I made some.

Cellophane and pipe cleaners,

feathers and ribbons.

They drift, mid air,

with the lazy current of the opening and closing of our door.

They are all the colours of the rainbow and remind me of childhood

and sunshine

and laughter.

They are everything that should be.

It’s strange being here, on William’s birthday.

My past and my present,

my loss and my gain.

It’s strange and symbolic.

The universe has a funny way of reminding you just how amazing it is.

It can ground you

and leave you with a sense of what is really important.

I miss the thought of him, more than anything, I think

because, really, that’s all I have.

I wonder who he would be,

this boy of eight

and all of the other important things that mothers like to know -

like the colour of his hair and foot size

and if his favourite food would be spaghetti bolognese

like his sister before him and his younger brother.

These are things I sometimes think I will ponder until the end of my time.

Some people might think that strange to celebrate a boy who isn’t here

but he was my son

and I loved him before we was even earth side

and just because he isn’t doesn’t mean these feelings leave me.

We are no allowed to leave the hospital today.

A story for tomorrow

but my little earth angel, my sweet girl gave us a big scare

and her health not stable enough to go

but the paed has said we can take her out onto one of the grassy patches

in the hospital grounds.

Dave and the kids are coming and we will have a small picnic together.

Together -

I think our butterfly boy would like that.

Happy birthday sweet boy.

We all miss you.

Very much.