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The following is a list of all entries tagged with IVIG:

The IVIG poster girl.

You know what makes me crazy?
Aside from driving for two and a bit hours like a mad woman to the hospital, so we can sit and wait for an hour and a bit for our half hour slot?
It’s a doctor who doesn’t know what we have been through and who looks the pred child up […]


Ivy update, I’ve never wanted something more… I think.

Today we went to the paediatrician.
Ivy has lost just over a kilo.
Her cortisol levels are out of wack.
Her iron stores are low.
Her chest x - ray looks better, the pneumonia is clearing.
Her kidney functions are still okay.
Her  left ear is discharging, her other is infected.
Her white cell count still high.
She is still sick.
But
it’s time to move […]