Three Ring Circus

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So here we are.

The paed called late on Friday night and I told him the Ivygirl was sick, really sick.
You know, that frightened, sick in the guts, knot in your throat, something bad is happening worry that you get when someone special is sick?
Yeah, that’s been me for a large part of the week. (As if you guys […]

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Worry, worry, fritter, fritter…

The paed’s secretary called this morning, asking me if I would push Ivy’s appointment back to next Tuesday.
Was Ivy that sick that she needed to see him today? He had a twins’ birth he needed to be at and alot was going on, did she really need his time and attention or could it wait?
I […]

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Cushing’s Syndrome

Ivy has the beginnings of Cushing’s Syndrome.
Here is a picture of Ivy when she started the prednisone
.
This was about a month in, January, weighing just under 12 kgs
This is Ivy at the beginning of May.

Weighing it at 15kgs.
See her face, the roundness, the loss of her neck? It’s known as ‘moonface’ and is a typical sign of […]

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When you live in the boonies…

…and you need to have your daughter seen by an endocrinologist, expect that you will wait a very, very long time.
What is your best bet, for a waiting time, my friends?
Six weeks?
No.
Try six months!
That’s right, six months, that will see us just about up to Ivy and Noah’s 3rd birthday
in November.
The paed’s idea that we […]

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Ivy update - playing with fire?

We went to the paeditrician yesterday.
Ivy was well (touch wood touch wood touch wood).
Her chest was clear.
Her stomach not too tender.
Her ear looked much better. Still not fabulous but he said he could see a clear spot.
Her bottom was clear of any blisters, clear of any trace of the pemphigus, just a small amount of […]

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Home.

Ivy finally stable and waiting admission to the ward.
It was so scary on Wednesday morning.
I couldn’t wake her up.
Two febrile convulsions and I knew she was really sick.
We had been chugging along at half health for a couple of weeks and then things went curly.
Bacteraemia. In old terms: blood sepsis.
She did not wake for 24 […]

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Suspension of regular posting

Ivy was admitted to hospital early Wednesday morning after a night of high temps and febrile convulsions. She was very septic but today has been more awake and even ate a tomato (a very good sign).  Hopefully she will be drip free and ready for the homefront in a couple of days. Thanking each and everyone of […]

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Dapsone is better than Prednisone because?

Today I got a fax from our paed.
It was a plan, some pathology results and a script.
That’s right, my friends, you can doctor a patient via fax now.
Don’t get me started.
Yes, I am disgusted.
Anyhoo, the plan; was to wean Ivy off Prednisone because she is at risk of diabetes and brittle bones and a plethora […]

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More thoughts… and an update on the ugly.

When I gave up my son to the unforgiving universe, I thought that I had paid whatever penance I needed to, that whatever wrong I had done in my life had been forgiven, when I let him go.
These are strong words, my friends and if they are too painful or heavy then, please don’t read. […]

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Here we go ’round the mulberry bush!

Ok, sorry anyone who is sick to death of my negativity and my ranting over Ivy’s health. If you don’t want to hear it don’t keep reading, in fact go here. Kelley has the most hilarious post up at the moment or go here and see photos of Jacqui having lost her first tooth but […]