Category Archive

The following is a list of all entries from the I hate Dapsone club category.

Home again.

We are finally home again after five long days of hospital and I really don’t know where to start.
Ivy’s bloods are all back within normal ranges now. Her haemoglobin is 111g/L. Her levels for the haemolysis is on the high end of normal(read only just). Her electrolytes, liver function and iron studies all normal.
She grew […]


Red & yellow & pink & blue…

Red is the colour that Ivy’s blood cells should be. Big fat juicy blood cells, plump with haemoglobin and oxygen. Red is the colour of blood that she may need now to correct this mess.
Red is the colour I see when I can’t get the doctors to help my girl.
Yellow was the colour of her skin […]


No feathery posts here today.

I was going to try to fill my blog with happy, feathery posts this week, my friends.
Truly.
I have them half written and ready to go but today, I’m sorry, it’s just going to be about the Ivy girl again.
*Waves to person who says I need to vary what I write about.*
If you don’t want to […]


Home again, home again, lickety split!

Hello, my friends.
I can call you that, can’t I? After the outpouring of care and love that I have just had the honour to read, I think I can definitely call you all friend.
Firstly; Thank you.
After a few days cooped up in the hospital cage…er… I mean, room, I am a little rusty with my words […]


Go directly to hospital. Do not pass Go. Do not collect $200.

By Dave.
(I have been given permission by management to set foot on the blog again for the sole purpose of the provision of information. In no way is any entertainment to be imparted.) 
As of Friday last, Ivy has returned to hospital, following a timely Paed consult.
Symptoms: Cyanosis (lips, fingers), Shortness of breath, Rapid pulse.
 Diagnosis: Acquired […]


Dapsone is better than Prednisone because?

Today I got a fax from our paed.
It was a plan, some pathology results and a script.
That’s right, my friends, you can doctor a patient via fax now.
Don’t get me started.
Yes, I am disgusted.
Anyhoo, the plan; was to wean Ivy off Prednisone because she is at risk of diabetes and brittle bones and a plethora […]