Category Archive
The following is a list of all entries from the hope category.
Ivy update, I’ve never wanted something more… I think.
Filed in Health, illness, Ivy - girl, hope, July 10, 2008, 10:23 pmToday we went to the paediatrician.
Ivy has lost just over a kilo.
Her cortisol levels are out of wack.
Her iron stores are low.
Her chest x - ray looks better, the pneumonia is clearing.
Her kidney functions are still okay.
Her left ear is discharging, her other is infected.
Her white cell count still high.
She is still sick.
But
it’s time to move […]
Ivy update - playing with fire?
Filed in Health, illness, I hate prednisone club, Ivy - girl, doctor related posts, grateful, hope, worry, May 6, 2008, 10:31 amWe went to the paeditrician yesterday.
Ivy was well (touch wood touch wood touch wood).
Her chest was clear.
Her stomach not too tender.
Her ear looked much better. Still not fabulous but he said he could see a clear spot.
Her bottom was clear of any blisters, clear of any trace of the pemphigus, just a small amount of […]
Ivy update or Dermatologists gone wild.
Filed in Health, illness, I hate prednisone club, doctor related posts, grateful, hope, March 8, 2008, 11:40 pmHere’s the scoop. Ivy is every dermatologist’s fantasy. The pin up girl of pemphigus.
We met with the guru of all things blistered. She asked us some questions. She took lots of photos. She made some suggestions.
Our heads did spin with possibilities.
What it came down to, what is our (limited) understanding and what has been confirmed this evening […]
Never ask a doctor for directions or Status Ugly: pending.
Filed in Health, illness, doctor related posts, grateful, hope, February 26, 2008, 7:39 amI’m posting this early because it is going to be a busy day, my friends.
I’m going to Sydney to take Ivy to an Immunologist.
It seems that when you stand up for yourself it earns you the right to be fast tracked.
I’m not quite sure how it happened. My head is still spinning.
David is skeptical. He thinks […]
My mum knits yellow booties.
Filed in Love, babies, fertility, hope, February 9, 2008, 8:27 pm While I’m trying to digest all that has happened this last week and work my way into the next round of tests and doctors scratching their heads, I thought I could give you this…
My mum knits yellow booties.
She started knitting them after William died. She doesn’t do it for money, she does it because she […]
Here comes the sun…
Filed in Health, illness, happiness, hope, January 14, 2008, 3:04 pmA song of hope on day 5 of treatment.
I think the Prednisone is working! I’ve updated the photos if you want to look.
