Home again, home again, lickety split!

Hello, my friends.
I can call you that, can’t I? After the outpouring of care and love that I have just had the honour to read, I think I can definitely call you all friend.
Firstly; Thank you.
After a few days cooped up in the hospital cage…er… I mean, room, I am a little rusty with my words […]

You know it’s going to be a bad day when…

…you leave the house and just as you step outside it pours down in buckets, soaking you and two toddlers to the core.
…you can’t find your car keys but your toddler son knows exactly where they are.
…you get to the car and realise that your husband has taken out one of the car seats.
…you get […]

Blow me down.

Thank you everyone for being patient and kind with me, while I wander through my William haze. I appreciate it more than you know. To be able to put my thoughts down and have them acknowledged and accepted is more precious than gold.
For those of you who were shocked by the paed’s lack of follow up […]

Home.

Ivy finally stable and waiting admission to the ward.
It was so scary on Wednesday morning.
I couldn’t wake her up.
Two febrile convulsions and I knew she was really sick.
We had been chugging along at half health for a couple of weeks and then things went curly.
Bacteraemia. In old terms: blood sepsis.
She did not wake for 24 […]

Faith restored or The tale of the tootsie rolls.

Last weekend was the anniversary of my Father’s death.
The honest truth is, I didn’t feel much.
Anger springs to mind.
Hurt, betrayal, yes but anger was definitely the predominant feeling for the day.
He treated me badly in life and in death, it is no different.
This could be the post where I tell you about my Evil Step […]

Ivy update or Dermatologists gone wild.

Here’s the scoop. Ivy is every dermatologist’s fantasy. The pin up girl of pemphigus.
We met with the guru of all things blistered. She asked us some questions. She took lots of photos. She made some suggestions.
Our heads did spin with possibilities.
What it came down to, what is our (limited) understanding and what has been confirmed this evening […]

Never the cool chick…

I was never the cool chick at school.
Ne - e - e - ver.
In fact, I was the opposite of cool.
I was the kid that everyone loved to hate.
Honestly.
Who can blame them, really? My fashion sense was laughable, I was fat, shy and dorky.
I mean, who wears a red smocked dress to their year six […]

Never ask a doctor for directions or Status Ugly: pending.

I’m posting this early because it is going to be a busy day, my friends.
I’m going to Sydney to take Ivy to an Immunologist.
It seems that when you stand up for yourself it earns you the right to be fast tracked.
I’m not quite sure how it happened. My head is still spinning.
David is skeptical. He thinks […]

He makes my heart sing.

I meant to do my work today.
But a brown bird sang in the apple tree
And a butterfly flitted across the field,
And all the leaves were calling me.
And the wind went sighing over the land,
tossing the grasses to and fro,
And a rainbow held out its shining hand,
So what could I do but laugh and go.
 

The good, the bad and the ugly.

The good;
My Parents in Law came up to visit yesterday and made me feel as though I was a partially competent parent.
My children were all ecstatic to be spending time with them.
We had a roast lamb ( with gluten free gravy).
Ivy had her first (almost) solid poo since…well, I don’t remember really… September 07, I […]