Three Ring Circus

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The IVIG poster girl.

You know what makes me crazy?
Aside from driving for two and a bit hours like a mad woman to the hospital, so we can sit and wait for an hour and a bit for our half hour slot?
It’s a doctor who doesn’t know what we have been through and who looks the pred child up […]

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Boonie Bureaucracy

When we last went to the paediatrician, the receptionist told us that our referral was up.
Without a referral from a GP, our paed will not see the cherubs.
He can’t, it’s the rules, don’t you know.
So, this week we tried to get an appointment to see the only doctor that is harder to see than the […]

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Just stuff and nonsense.

Today we were told (quite by accident) that the doctor does not want us to leave until Thursday. It would have been nice to hear that from the paediatrician or even the staff specialist.
But No.
Thursday is Lily’s 10th birthday.
And I’ll be in here.
I think I have just been made to do something I don’t want to […]

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So here we are.

The paed called late on Friday night and I told him the Ivygirl was sick, really sick.
You know, that frightened, sick in the guts, knot in your throat, something bad is happening worry that you get when someone special is sick?
Yeah, that’s been me for a large part of the week. (As if you guys […]

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Stop Press

He cancelled.
Here’s to a fantastic long weekend! (not)

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Worry, worry, fritter, fritter…

The paed’s secretary called this morning, asking me if I would push Ivy’s appointment back to next Tuesday.
Was Ivy that sick that she needed to see him today? He had a twins’ birth he needed to be at and alot was going on, did she really need his time and attention or could it wait?
I […]

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Where I talk about febrile convulsions…again.

In the small hours of Wednesday morning, Ivy, who, for all intensive purposes has had a great month, spiked a temp and had a febrile convulsion.
It was only one.
My mummy head screamed to scoop her up and take her to the hospital but just as I was about to leave (It takes an hour to […]

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Cushing’s Syndrome

Ivy has the beginnings of Cushing’s Syndrome.
Here is a picture of Ivy when she started the prednisone
.
This was about a month in, January, weighing just under 12 kgs
This is Ivy at the beginning of May.

Weighing it at 15kgs.
See her face, the roundness, the loss of her neck? It’s known as ‘moonface’ and is a typical sign of […]

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Honesty is the best policy.

 *please read this with the tongue in cheek, it so deserves*
Okay. I suck. I know it.
I hear you.
My posts are big fat downers that everyone is sick of hearing (thank you new troll for pointing that out).
Going off the crazy pills was obviously a bad idea.
I have no life.
The pead told me, in no uncertain terms, […]

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When you live in the boonies…

…and you need to have your daughter seen by an endocrinologist, expect that you will wait a very, very long time.
What is your best bet, for a waiting time, my friends?
Six weeks?
No.
Try six months!
That’s right, six months, that will see us just about up to Ivy and Noah’s 3rd birthday
in November.
The paed’s idea that we […]