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Daily life

About having a blog and writing about my kids on the internet.

If there were no internet

and no blog

life for me would be very insular.

One of the main reasons I started to write online was because of my isolation

and yet isolation seems to be the order of the day.

There have been a lot of blog posts flicking around lately on

writing about your children online

and how disclosing information is not in their best interests -

which might be true.

There have been bloggers who condemn the very things that I write about -

talking about Ivy’s illness online, well, that cheeses some people off, apparently.

In fact, as far as they are concerned,

no parent ever should reach out into the online world

looking for answers and like minded people who are going through a similar thing.

Apparently that’s wrong.

It’s okay for them to write about their own conditions online

because that’s their choice.

They can garner as much strength from their online community because they are talking about themselves

but a mother trying to get through life with a chronically ill child -

forget it

because writing about the child, however discreet it may be,

is taking away their right to privacy.

Which might also be true.

Not that I’ve ever been ‘discreet’ about my kids

No pseudonyms,

no ‘only taking photos of the children from the shoulders down’ (well, sometimes, in the name of art)

no trying to hide their identity.

I mean, honestly

some of the people who harp on the most about these kinds of things

then turn around and do a double page spread in a national newspaper,

a family photo sprawled across the feature, with a link to their blog and the suburb they reside in

in widely read magazines

or I see them on national television talking about their blog and their children.

So, it’s okay to have a photo of your kids in newspapers and magazines

and on the TV

but not on the internet?

That’s bizarre to me -

especially when media today has taken a large turn towards being online.

They talk about sick weirdoes but

sick weidoes are everywhere,

not just on the internet.

Some of the most well known pedophiles

are priests

television presenters

actors

teachers

doctors

neighbours

people who you should be able to trust.

It’s just not as simple as switching off your computer and never posting about your children anywhere online

ever again.

There are sick people everywhere.

Aside from that – it’s really not that hard to track down a person, work out who a person is.

Even if you don’t photograph your kids’ faces

or if you use aliases -

you don’t need a lot of information.

Look at all of those bloggers who have been scrutinised lately

when average, every day people do a little research and find their earnings and their debt amount

and then splash that around  in forums and such.

I’m sure that is not freely disclosed in the scratchings of a post

and yet someone, somewhere thought to look.

Look at child abductions and pedophilia rings

before the internet was a thing.

Evil has always existed throughout time,

so why are we suddenly blaming ‘Mummy bloggers’ for making things worse.

We sign permission for our kids to be photographed at school, for goodness sake.

When we fill in paperwork for day care or enrolment at school

when we fill in forms at the paediatrician’s office

that is willingly giving away information.

That is giving away your so called privacy.

The minute we open up our lives to a person we expose ourselves and our families to another human being,

who will most probably go and tell another family member,

or a friend in the playground,

or a colleague

and soon everyone knows your story.

Privacy?

Please.

Unless you are prepared to keep your children home and never go out into the world at large

there is no privacy.

For the record,

I don’t want to expose my kids to anything that will harm them

any more than the next person.

I ask permission to write about my older kids

and have recently sought the same from Ivy and from Noah,

although I’m not too sure if they understand what they are agreeing to yet,

they know I have a blog and that I like to write about them.

My family (including David) have been largely supportive (and proud) of my of my six year blogging habit

and how it has helped  to connect with other mothers who are going through similar things

and how it has helped me to come out of my shell again after losing my baby

and how it has opened up a world of (all be it small) philanthropy

and helping other people

and how that gives me a feeling of worth.

Darn it, I’ve even made some real life friends out of it.

 

If every single person

who ever wrote something about their child on the internet

suddenly removed all trace of their thoughts

would the privacy rate go up?

Would bad things stop happening?

I doubt it.

Human beings are social creatures

and sooner or later someone would say something to another person

and the cycle of disclosure would begin again.

So, will I continue to write about my kids online?

Probably.

Will I continue to photograph my children’s faces and ‘splash’ them all over Facebook.

Yes

because without the connection of other humans

(and for some of us that connection is mostly through the internet due to proximity, uncertainty, life skills and availability)

what is the point of existing at all?

Why have life when you cannot share it -

your hopes,

your fears,

your triumphs (my children)

your low points -

if it doesn’t matter to anyone else but you

then does it really matter at all.

My children are a large part of my life

and their tales are mine too.

Without them

there would be no Circus

there would be nothing beyond a 40 year old woman living out in the sticks somewhere.

People are so intertwined,

how can we divulge of ourselves without including the lives of others.

That would make no sense at all.

 

 

New things.

I’m not sure where this blog is going right now

in fact,

I’m actually not sure where this post is going

but I’m typing it out hoping to find direction.

After six years of blogging there are days when I look through its archives

and bore myself.

Everything seems to cycle in sameness year after year.

My blogging mojo is traditionally low about now

but this year it’s almost gone -

there are things happening in our family,

that I’ve been asked not to write about

and that is simultaneously easy and hard at the same time.

This blog has become a place to sift through all of my emotions

and to not be allowed that is difficult.

I’m not used to processing things without ‘talking’ them through.

It’s confusing

and hard

but I have to consider the person who requested it.

That’s not to say I’m shutting down

or quitting

or anything else.

It just means that I need to find my new groove.

I think that I am going to start on a new photography project I’ve found

and post it here at the end of each week, as a start.

As for the rest,

I’m sure it will work itself out.

For now, I wanted to share some of our Summer.

Ivy has had four good weeks of health,

although she is starting to throw off warning signs that her body is working hard now,

we have taken advantage of our time

and spent it in the water mostly.

 

 

I purchased an inexpensive pool and watched as both Ivy and Noah have found their confidence

amongst the long lanky legs of the teenagers making  violent whirlpools

as they circle their fishbowl

and relished in the laughter

and squeals

and splashing.

 

We’ve been to the beach -

the very same that in the year previously

Ivy would not even let the waves lap at her toes.

This time we climbed in and out of caves

and walked up to lookouts

and waded into the water without a worry at all

 

and yesterday we found ourselves at a gorgeous little river shack

with good friends

who are really more like family.

We tried new things -

whooshing along at high speed

knee boarding

and tubing  on outstretched rope,

cutting through the man made waves of  the boat that was pulling them

and Ivy and Noah blossomed.

All of the kids did.

Me too.

Last year was such a lonely experience for me.

I spent the majority of it in the hospital with the girl

or holed up at home dealing with the  emotions that go along with this life.

I don’t really want to do that this year,

although I’m not blinded by my want

and I am realistic in the knowledge that not much has changed for Ivy

and therefore for the rest of us

I’d love to do more,

see more,

be more

and yesterday a good start.

I didn’t do a lot .

I sat in a banana chair

and mostly watched and listened to everything that went on around me

but it was a start

and by the end of the day

I felt the wonderful effects of sunshine and friendship.

I’d forgotten how much I like to be outside.

I’d forgotten how much I enjoy people

but it was just what I needed -

that day

with all of its new experiences.

Not living normal.

The thing about having a child with immune deficiency or any chronic, all consuming illness is that  you never know;

you never really feel certain about anything at all

and planning something, even a week in the future, is like taking a giant leap of faith

but you have to.

We have to.

Yesterday, when the doctors were angry and huffy with me

and I them,

one of them said:

“with a kid like Ivy, you can’t live like normal, you can’t plan. Everyone should always be on high alert, just in case.”

but that’s not a way to live at all now, is it?

Waiting in the shadows for the bad to come -

always living with that fear.

It’s certainly not the way I want my other children to live.

I want them to make plans,

go to things,

be with friends

and I want that for Ivy too.

She deserves ‘normal’ as much as she can get it.

It’s an impossible mentality to have when at least one of us needs to work.

In a job like David’s you need to commit to being there

else you’ll lose your position

and therefore our whole family’s income.

You can’t stop the world while you wait for things to get better.

You just have to work around it.

 

 

Word-less Wednesday – hallway twirling.

One of her favourite things to do is twirl in the hallway.

Since she was little

she’s chased the dust fairies as they danced on the sunbeams

and spun and spun until she’s breathless.

Sometimes it’s in her PJs

and other times it’s when she has a new tutu to try out.

I shall always remember these days.

In years to come

when she outgrows the simple joy of spinning.

My tiny hallway dancer.

 

Playing along here today.