On patience (patients) and time.

This waiting for the doctor to call back is getting to me.
Last week he was on call for two hospitals and was run off his feet.
Exhausted and unable to get back to us.
So it was this week that I was hoping to talk to him about the girl and what the deal is with her […]

The box under the bed.

It’s been there since he died, the box under the bed.
With all of his things inside.
Things that mean something and nothing.
It comes out rarely now and I thought that I had moved past the material possessions, the physicality of his abscence;
The ultrasound pictures.
The small soft toys, an outfit, a crocheted blanket.
His birth certificate and one […]

A piece of him

We were standing in the line at the material store.
Every kids favourite thing to do on the Sunday of a long weekend, don’t you know.
It is, isn’t it?
Surely,there is nothing more rewarding than trawling the rows upon rows of cottons and velvets?
Surely.
Each child has picked a coloured fabric so that I can make some superhero […]

Weekly Winners, super hero Sunday.

Hi there!
I can’t believe I am going to give you all a sneek peak of our Chrismas card photos but I am. Mum, Amy, Jen, Mary, Tracey, Trish close your eyes.
I said close them!
No?
Okay, well then sit back and enjoy my Weekly Winners or you can see all the other entries over at Sarcastic Mom’s blog!
These are […]

Structurally sound.

Ivy’s echocardiogram went well.
There are no structural abnormalities and all of the valves and chambers look good.
What he did find was that the electrical firing of the heart is a bit…
higgelty piggelty
that there may be two different nodes vying for control over the cardiac rhythm, causing the high heart rate and some arrhythmia.
The pressure in […]

On tigers and therapy dogs…

Once upon a time a Mummy went searching for her very quiet children. She had noticed the eery silence and thought to herself that it was not a good sign to have such a still house.
The Mummy searched the bedrooms high and low and the lounge room but she neglected to look behind the couch.
She could not […]

Beautiful boy

 

Beautiful boy,
you were sent to
mend my soul
and break my heart.
You were here
to teach me.
About how
beauty and cruelty
can coexist.
Beautiful boy,
life is so different now.
Seeing that fulfillment and poverty
are one and the same.
You were here
for a whisper in time
and managed to teach me
more than I could ever
hope to have taught you.
Beautiful boy,
Such expectations already met
by your death.
You […]

The girl.

The girl sits in the playground, lost in a world of colours and drawing.
The children play around her, throwing ball, skipping, playing chasings and the girl is excluded from all of it. It’s okay though, she prefers it that way, she would rather that than the teasing.
 Being alone is not so bad.
The bullying comes often […]

Updates.

We went to the hospital and Ivy had her IVIG. In the light of day and with a few phone calls they miraculously found that Ivy’s name was on the list for admission. We had “slipped through the cracks” because they assumed Ivy had been having the Intragam for a long time and we knew […]

Hospital hoopla.

Today Ivy is supposed to go in for her second infusion of IVIG.
It’s day 31 and it’s already been put off once because Friday is not a good day for anyone, apparently.
Not alot gets done on a Friday.
Young doctors and nurses minds are filled with thoughts of the weekend,
apparently.
Monday was better for us anyway.
The thing […]