We met with the endocrinologist,
who was almost as upset as I was about Ivy’s suspension of the growth hormone.
Unfortunately the ivory tower people don’t take anything but the amount of growth into consideration -
not the improvement of side effects
or the acceleration of bone density
or the impact all of that has on a little girl who just wants to be normal
and when all is said and done, Ivy’s growth has been inadequate for them.
Despite what we consider to be extraordinary
and despite research that backs all of these advances we have seen in Ivy with cold hard evidence that suggests that growth hormone is most definitely in the small girl’s best interests.
The endocrinologist will fight -
she will appeal and write letters and go before the board
but the truth is, it looks as though it is going to be a long, hard fight to convince anyone that Ivy should continue.
We wrote a letter to our local member with the encouragement from Ivy’s medical team,
but not to expect much at all, considering we had a caretaker government.
Personally, I would have thought, with an impending election looming, now would be a great time to do right by the people.
They’re more likely to do nothing because Australia feels indifferent about its leaders
and evidently they feel the same way about us.
Who’d have thought the simple logistics of keeping your child in the best of health would all come down to politics.
When you become a parent you most certainly never take that into consideration.
Well, I didn’t, at least.
Perhaps I am naive
or perhaps our issue is not worth their time.
I felt pretty helpless when we were told all of that but not one to take no for an answer, the endocrinologist suggested we buy the human growth hormone privately.
Of course we will!
Anything at all to help the girl
but at a hefty price.
The pharmaceutical company has given us the best price they can but Ivy’s weekly dose equates to around $165, which is doable if we eat five minute noodles for the foreseeable future.
Seriously though, we will eat and I will get that growth hormone for the girl come hell or high waters.
Let’s just hope the ivory tower people reconsider soon.
We ordered it and paid for the first fortnight’s worth last week
and after much backing and forthing and co-ordination challenges
it’s here -
to start tonight.
Is the girl happy about it?
You bet your subcutaneous needle she is.