Last week, the day before Ivy needed to go to surgery
and when she was stable enough,
the Starlight Captains in our hospital organised time for Ivy to come down to the Starlight Room.
They made sure that everything was okay with our nurses
and that there was little risk of infection
and then they pampered the small girl
and made her feel like the most important person in the world.
Painting fingernails and toenails
seems like such a simple thing
but it means so much when you are small and isolated
and brings so much joy.
Ivy is always relaxed and happy when she is with them -
even on bad days they can always bring a smile to the girl.
The Captains are like a breakthrough of sunshine on cloudy days
with their amazing energy
and kindness towards all of the children who frequent our hospital here.
I will always be thankful for them and for Starlight.
This year the Starlight Children’s Foundation Australia is celebrating 25 years of transforming the experience of hospitalisation and treatment for seriously ill children across Australia.
It was founded in 1988 and has become such an integral part of care for children who are struggling with illness.
Starlight have been such a big part of our lives since the very beginning of our journey.
The Captains especially have always been there.
They symbolise happiness and laughter for Ivy and for our other kids too.
Starlight represent time out from the seriousness of life with a sick child
and they represent hope.
Hope for Ivy
and for me.
That’s kind of a big deal when a lot of the time things feel out of control
and a little helpless.
Ivy and our family have been invited to be ambassadors for Starlight as they commemorate this year
and we are truly honoured and humbled
and a bit proud as well
but most of all we hope to be able to give back just a little of all that we have been given.
If you are a supporter of Starlight (and thank you if you are), you might see Ivy’s face around the traps
as we share Ivy’s story, her wish and how important a foundation like this is for families like ours.
I’m looking forward to writing about some of our adventures here too
and hope that in some small way we can help to celebrate the wonderful Captains,
and the people who work tirelessly
weaving their magic into the world of seriously ill children everywhere.