Putting a positive spin on hospital is hard
but it needs to be done
else you may lose what’s left of your sanity.
So before I go any further -
Ivy’s team have been amazing and our nurses brilliant.
I have never been so happy to report that things have run like a well oiled machine to get us to tonight.
We were forced into a midnight dash to Accident and Emergency on Monday
by uncontrolled, unrelenting fever and an alarming heart rate
and Ivy has been becoming reacquainted with some of our favourite IV antibiotics and hydrocortisone ever since.
She was in such a rapid decline that she dropped her oxygen saturations too
and needed continuous O2 and several hours to stabilise.
Tomorrow she’s going to surgery
so the kind surgeon can tend to the same niggly abscess on her belly that has been a problem since November -
which is what made her sick.
It was set off again by the full dose of immunoglobulin that was infused last Thursday
and then the gamma -
and the girl has been struggling since.
Of course that makes sense -
an influx of antibodies are going to do what they’re supposed to and fight.
The new doctor mentioned that Ivy no longer has issues with inflammatory response ;
and biologically understandable with the addition of gamma interferon.
It does its job well.
In fact, I’d have to say that for the last twelve months, since we started the girl on that medication
she has largely lived in some kind of inflammatory response for much of it.
The trouble with these pockets of infection for Ivy is that it also gets into the tissue
and without cutting all of that away
the bugs just proliferate again and eventually cause more issues
and it’s really difficult to excise all of the bad tissue without going overboard and taking too much of the good.
After weighing everything up, surgery seems our best hope, once again.
It was not a decision made lightly.
Can I just take a minute here to say that abscesses bite.
They really do.
They sneakily encase themselves in a protective biofilm that make it almost impossible for antibiotics to penetrate
but continue to infect the surrounding tissue.
Smart, I’ll give the bugs that.
Smart but conniving in an evolving bacteria kind of way.
Yesterday the girl slept.
She slept all day and all night
with her vitals all over the place
but today woke much brighter -
her temperature normal and her heart rate too.
I love it when things just work properly.
She’s spent the afternoon with the Starlight Captains
and with our awesome play therapist – having her medical play session -
something we have been trying to help with her anxiety.
That’s another post altogether.
There is so much going on with Dave and the other kids
and I feel terrible that I’m not there to help
and administer hugs along with those motherly words of wisdom that teenagers roll their eyes at and pretend to hate but secretly crave.
Perhaps that’s a post for another time too.
Tonight I’m just hoping for a good outcome
thinking good thoughts for the girl
and a plan to get us healthily home.