Yesterday was not a very good day.
At least not for me.
Ivy was doing better and spent the day sitting with me
in the large green chair
but for me yesterday was stressful.
It’s not every day that I learn that ‘no paediatrician this side of Sydney’
would be willing to take my daughter’s care on.
I cried a lot.
When the on call paed
(the one other doctor I had considered asking to help)
told me that
and also his suggestion was to transition Ivy’s care over to
another doctor I could feel the last of my resolve to be strong
The only thing left was to cry.
Scared is a good word to describe how I felt
and cross because I felt it was inappropriate to have an unknown doctor
thrust upon us when we were in the hospital setting
with no ability to think straight
and with a sick child between us.
People told me over and over again that this doctor was lovely
but that just upset me more.
Having an unknown doctor and peoples opinions of someone
I had not yet met was disconcerting.
It felt as though I had to like her because everyone else did.
The afternoon move quickly and slowly at once
and the night was restless for the both of us.
Ivy tossed and turned with low heart rate at first
and then a fever and a high heart rate
and I couldn’t sleep because my mind wouldn’t let up.
I tried to think of things I could say to this new doctor
and what she would make of Ivy’s quirky immune system
but also what she would think of me,
this puffy-from-too-many-tears mother, with tired eyes
and an even more exhausted spirit.
When she arrived I was nervous.
She had kind eyes and a kind heart
and as I recounted Ivy’s history she was quiet and listened.
At the end of it all she said that she understood.
She understood Ivy’s disease and her pathway
and why she didn’t mount a response
to infection until it was very late in the illness game
and I felt myself relax.
She said she understood how difficult things were with a child
(and for a child)
who had this kind of immune deficiency
and then she said the best thing of all.
She said I’d done the right thing.
The right thing bringing Ivy into the hospital,
the right thing following my gut
and the right thing for Ivy
and this time I cried again but not because I was frightened
or felt as though nobody knew what to do to help my girl
but because everyone had been right.
The new doctor was amazing.
She said her job was going to be
to streamline care when Ivy had to come into the hospital,
to have some plans in place so everything went smoothly
to be there to fashion a course
and so we felt that Ivy was getting good continuity of care.
On top of all of that she said that she wanted it to be a slow introduction
and getting to know each other,
that forcing me to take on another doctor when Ivy was unwell
and I was not at my best was wrong
and would that be okay with me.
Would that be okay with me?
So this afternoon I am hopeful again
and maybe it’s true
that when one door closes another one opens.
YAH for understanding Doctors… may it be a long successful partnership with not too many emergency visits!
Praise the Lord. (that is all.)
She sounds fabulous!
Wow! Could THIS be the light at long last at the end of that long dark tunnel!
This does sound hopeful indeed, and although Ivy’s paed has closed the door recenttly (for whatever unexplained reason) and your hope to find another known paed has gone, this new door opening could shed a whole new light on Ivy’s care. New eyes & ears & the vindication that you have consistently done the right thing could Definately be the promise of the solution you’ve been hoping for, for so long.
There seems to be a reason now, for renewed hope shining through this open door. xoxo
I am cry in heartbreak and happiness… I am so glad you have found THE doctor that is willing to help and I am so grateful that you found that door that opened.. I really hope Ivy gets the right and best treatment for her..
xxx my prayers are with you and Ivy and your family!
It is so wonderful to hear about the new doctor. I hope she brings relief, reassurances and some new hope for you all.
some good news and hope, oh yay! so glad to hear it and hope it means Ivy can be home again soon
Hurrah! I’m so so happy for you all!!!
I am quietly excited for you and this new doctor. I hope she continues to be kind and amazing and that she makes things easier for you.
Tiff, i trust this is just the turn in the road you have been looking for – have a quiet heart and mind and soak up the positive vibes. xxx
I pray it is the answer to many prayers. She sounds so encouraging.
This is wonderful news! Especially glad she both LISTENED and HEARD.
I am so glad to hear this! Although this was definitely not the right time to make a change, perhaps the other doctors knew that this doctor could do a better job for Ivy than they could. I hope this was the case.
I truly hope this turns out well for you and Ivy.
You’ve both had too many disappointments lately.
Oh my I am sso so excited and happy for you all. I am praying for a smooth transition and that you end up having an amazing relationship with this doctor and that she cares for Ivy as she would care for her own children, and that she keeps a close eye and takes care of you and the rest of your family as well. Praying praying!!!
Im teary myself reading this Tiff, so very happy that the new Dr is amazing. I hope this is the beginning of a better life for you, Ivy and the fam xxxx
I am so happy and hopeful that you have a human doctor.
oh this sounds good, praying that it truly is!
Oh Sweet Jesus Tiff, that is the best news in a long time! Not only did she listen to you, she going to make you a PLAN. I can think of nothing better right now. Even if she doesn’t have all the answers to make Ivy better, a plan will hopefully put everyone at ease because each person knows what they need to do or what the next course of action is. Is this doctor at your regular hospital?
I have my fingers crossed that this is the right doctor for Ivy. I like her first impression. HUGS
Why do you Ivy and family always have to be on a bloody roller coaster without having a good time? You were threatened, told Ivy was black listed, and put in absolute terror first. Hope and pray this woman works out, that she is a humane human being first and then a damn fine doctor. Give it 6 months to a year, if she is still listening Aand responding/acting appropriately, then you can tell her she has a worldwide fan club who love your family and her. Oh \Tiff, try to get some rest and ease your heart, eat some chocolate, take a deep breathe and hug the princess again. Praying for all of you, and that a miracle happens with David’s job and they show compassion again. David could ask his bosses what they would do if they had a child with such a compromised immune system. XXX Barbara
I’m so so so happy to hear this wonderful news!! Prayers have been answered!! Having a doctor you trust and who “gets it” is essential. I’ve been following your journey, and this new doctor makes me smile =) Best to all of you!
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