Archive for April 2011
Westmead bound.
We’re here.
In this place.
It’s okay.
No, really
it is.
I will admit that we were both shaking
Ivy and I.
Our hands clasped tightly, our fingers laced
both of us frightened of the past and the future,
the sounds and the smells thick with promise
and with pain.
+++
The ward is vastly different from where William was
in fact different from anything I’ve ever known.
Me – a hospital parent veteran.
Out of my league.
It makes me appreciate our little ward at home all the more
and the nurses
and yes, even the doctors.
It’s not that this place is terrible because it isn’t.
It is a busy, bustling hive of activity.
On one side
there are huge rooms
dedicated to kids just like Ivy.
The immune deficient, the children with endocrine issues,
the small people who will deal with hematological challenges
for all of their lives.
They come and go,
many with sisters and brothers (it’s the school holidays, after all)
and all of them with a rushed, tired parent.
They look weary and worn by the system.
I can see myself in their eyes, when we walk our own hospital corridors.
On this day though
I must appear like a scared rabbit
because they look at me kindly
and when our eyes meet, I can almost see the stark memories
of their first time reflecting in their faces.
They say hello and show us where to find things.
There are many doctors doing the rounds and every child,
every family
is greeted warmly and with familiarity.
It is very much like we are on the outside looking in.
Our doctor comes.
She talks fast and does a scratch test
which Ivy reacts to.
She doses Ivy with the first dose of lactoferrin –
at 1/100th of her original dose
and twenty minutes later Ivy is a ball of itchy redness,
her cheeks hot with allergy.
The doctor is both interested and excited.
If that is the worst that Ivy’s body will throw at her
then she can definitely work with it.
Our appointment, which began at ten is over.
It’s only eleven
and our room is not available.
We have lunch
and escape to the glorious sunshine
but at three,
David has to go and our room is still not available.
We are given a crash course on the workings of the ward.
We are on the parent care side.
There is minimal nursing care during the day and none at night.
We are basically boarders within the hospital unit.
Only there so the doctor can monitor Ivy as she goes through
desensitization
and while tests are taken.
The remainder of the day we are left to our own devices.
Finally we are given a room.
Ivy promptly starts to cry.
It smells funny.
It’s not her hospital.
Where are her nurses?
She is redirected with colouring in and drawing.
A DVD is next.
The shower is strange and she cries through that too.
She cries because I have brought the wrong pull ups
because I am brushing her hair wrong
because she doesn’t like the painting of the three girls on the wall.
They are all little things
but they are everything as well.
I spray the room with some of my perfume
and soothe her the best I can.
Soon she is blessedly and thankfully asleep.
At least we are both on the same page, I think.
It is very different here.
The bed is a standard issue fold out.
Cardboard thin, bar across the middle of your back edition.
Some things are the same everywhere.
I can’t complain.
I’m thankful for the space
that has a verandah, with an opening door,
so fresh air can make it’s way into the room.
I’m grateful that it is nothing like the place where William died
and that I am essentially okay with being here,
that the memories are not all consuming
and that I can concentrate on the reason I am here:
to find a way to help my girl feel better.
Fly free.
Five days does not seem long enough to etch the memories of a soul onto your heart
but five days is all that I was given.
To remember little feet and baby fuzz.
To remember that beautiful earthy smell.
To commit every single detail of a not so small boy
with an extraordinary heart to my own.
It’s not enough.
It will never be.
+++
Seven years is a long time for pain to subside.
It’s long but it isn’t
when it only feels like yesterday.
It could be seventy years and it would still hurt, I think.
A different kind of ache
but an ache just the same.
Some days I wonder what he would be like.
Some days I can’t even say his name
but mostly there is a space,
a broken piece of my heart,
that is crammed full with history
and longing
and love
and today I can feel that -
like a gaping wound
that cannot be repaired
as all of my memories fly free.
Like him.
Fly free, my sweet little one.
Fly free.


















