Archive for March 2011
Missing
I miss my kids.
I miss their noise and the life that flows through our home.
I miss that.
I miss lying in bed with Dave and being squashed in the middle,
A five year old boy and girl on either end -
her curled neatly into the fetal position, the morning sun catching in her curls
he spreadeagled, regaling us with stories about cars and tow trucks.
I miss knowing that a nurse is not going to come through our bedroom door
to add another medication into a drip that wasn’t there a week ago.
I miss seeing Ivy smile
not those little half smiles that she pulls
because she thinks it’s what I want to see.
A real smile.
I miss hearing her bossing Noah around
and the push and pull of their kinship.
I miss hearing her giggle.
Here, she only seems like a half self.
Her eyes are cautious, not wrinkled at the sides with laughter.
Her mouth held tightly, in strength as much as in weakness.
I miss having the freedom to choose.
I mean really choose.
Here my choices include whether to risk a little life
one way
or another.
Whether to fight
or concede.
I just don’t want those kind of choices.
I miss feeling certain.
Living in fear is no way to live at all.
It’s exhausting
and terrifying.
I miss feeling happy.
In here it’s a mixture of confusion and anger and sadness.
In here nothing seems right
and yes, I will admit that
it feels as though the colour has drained from our world
and everything is washed in different shades of grey.
It’s hard to remain positive some days.
This morning I wondered if I could just disappear.
Take the girl.
Take the risk.
Walk away,
just go missing
but that’s not the answer either, is it?
The case here

When you hope for something you are often let down.
Which is the case here.
The girl’s port line is infected with candida.
The very same that was in the last one that was removed
just three months ago.
I have cried and gnashed my teeth.
I have been sad and angry, hurt and confused
but none of that matters
because despite my feeling that this is insurmountably unfair
the port will need to come out.
I don’t want to put another one in.
Ivy and indwelling catheters do not mix.
I know that now.
There are two different camps -
the few who agree with me
and the many who think I am insane
not to try again.
At the moment I just want the silly thing gone.
A picc line will replace it for as long as is humanly possible
and then Dave and I will have to make a new decision.
The paediatrician will be back on Monday
and that is when things will start to gear up for surgery.
Surgery again.
I can hardly fathom it.
The thought of putting Ivy through all of this is despicable.
I feel as though I have failed my littlest girl,
failed everyone, really.
Ivy has had a big cry.
She knows what needs to be done
and all we can do now is wait and recover.
Unfortunately not another blogging conference post.
This is most certainly not the blog post I had planned.
It was supposed to be about the conference.
It was going to be peppered with photos.
Instead I’m typing this in the hospital while Ivy sleeps
and sleeps
and sleeps.
I’m not exactly sure how this happened.
How I went from having the best weekend in a very long time
to driving in torrential rain,
with seven frightened kids (and a frightened me)
to the hospital.
How I went from feeling happy and hopeful
to tired and stunned and grumpy
but here we are.
By the time we are released
the blogging conference may very well be a distant memory
and my original post left,
with my heart,
in Sydney.














