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Archive for December 2010

359 days

359dayswebWhile most of us are looking forward,

wondering what the new year has in store

Noah laments that there is still such a long way to go until next Christmas.

I think 2011 will spin by so fast for him

that the tinsel and the stockings will be out again before he knows what has hit him.

Me?

I’m neither here nor there.

No anticipation, no regrets.

2010 was such a mixed bag -

I mean each year has been, who am I kidding.

In 2010, with your help,

we raised an unimaginable amount of money for the ward that Ivy spends so much time in.

I will be forever grateful

and in awe

of a group of people out there,

that I have come to consider my lifeline,

my support,

my friends.

I think, despite all of the hard stuff

that is how I will remember this year.

2010 – the year of Team Ivy;

the year of community.

Welcome 2011, may you be all that

and more.

A clip and a link.

There is so much to be said,

so many stories that I had to tell.

That was before Christmas, of course.

Before our last hospital stay.

Maybe I will tell those stories – the highs and lows

but tonight I want to show you this clip

and share the link to the segment on the ABC’s 7:30 Report (you can find it here, on the right sidebar, under the title ” greatest gift of all”).

I am very proud to be a part of it

and the Australian Red Cross Blood Service contacted us on Christmas Eve

to let us know that they had an amazing spike in phone calls and appointments made and hits to their website following the story.

I was very happy to hear that.

I also want to tell you all how thankful I am,

despite all of the sickness and sadness and misadventure.

I am thankful

for blood donors,

for the opportunities that Ivy has because of the gift of blood,

for all of the kindness and generosity that we have been shown,

for all of the endless amounts of support I am given as I walk this journey.

I am thankful for all of you.

Home for the holidays.

christmashomeweb

We made it home.

We made it through eight hours of panic shopping

and another four of wrapping.

We made it into bed at 3am

and started the celebrations at  five.

castleweb

I didn’t think we would be able to pull it off

but by some small miracle

we did

and Christmas happened

and I may have entirely lost the plot and cried a bit (a lot)

but I think,

just maybe

that  was okay.

We made it to the beach

to have lunch with my mum

and even though the littlest girl could not go near the water

and tired very quickly

she decided that the day was fantastic

and magical

and more.

Just quietly, so did I.

watermelonweb

May this season bring you love and laughter and light.

May there be joy in your days and hope in your heart.

treeweb

From my family to yours,

where ever you are in this crazy, mixed up, beautiful world

Happy Christmas.

hopeweb

Miracle.

It has been (quietly) said that I just may get my Christmas wish.

Home.

The uttering started to get louder tonight when Ivy’s first culture

post port removal came back clear

and the echo of her heart yielded more good news.

The paed

( who has been there for Ivy and I every step of the way, this time)

is hopeful for a Wednesday discharge

and I am hopeful too.

Ivy will need to have a renal ultrasound to make sure her kidneys are not

damaged and another blood test to make sure the bacteremia

and the candidemia have left her system.

If those are both clear

we are going home for the holidays!

It’s not that simple of course.

Ivy will need to have ongoing treatment intravenously

but at least we can do it at home.

I haven’t promised the girl anything but today

when we went for our first walk around the hospital since our arrival

and breathed in the glorious sunshine

and danced in sparkly Christmas shoes ( her, not me)

I mentioned the word;

Home.

Home with my babies and my husband and my crazy busy life

that I have missed every single day.

Home with my girl.

Home to go panic shopping on Thursday for Friday’s Christmas Eve.

Home to attempt the festivities after all.

Home.

Never did any word sound so sweet.

I do believe in Christmas miracles it seems.