Why can’t I have a PICC line repair kit?
It arrives in the mail, a small envelope, with the hospital logo on the front
and inside
the PICC repair kit that should have come home with the girl.
Useless now that the new port is in, I set it aside.
“What’s that, Mummy?” Ivy asks as I wander through the house
and I tell her.
She seems pleased that someone has thought to send her this bundle of plastic.
I think nothing more of it and start on the laundry.
The background noise suddenly becomes urgent and cranky
and I hear him stomp into the room, tearful and cross, he berates me with questions .
“How come Ivy gets all the presents?”
“Why can’t I have a PICC line repair kit,
I want a PICC line repair kit too”.
He is crying now.
He feels that he has been given the bad end of this deal.
I pull him close.
“Our friends send you gifts too, Noah, you know that” I respond
but he cries harder.
It is difficult for him to understand.
I try to tell him that Ivy would trade every material thing she owns for not having to have needles.
I try to tell him that being healthy is better than anything else
but he is four (almost five)
and he takes his health for granted.
He expects nothing less.
It’s the way it should be.
He swipes the angry tears away
after I tell him that to have a PICC line repair kit
it will mean having to have a PICC line put into his arm.
Does he want that?
No,
he shakes his head silently.
Solemnly.
Ivy has been listening too
She is crying now
because we have only,
days before,
finished a conversation about how she will always need the IVIG,
always need to have the port and medicine and the hospital
and how without those things
she would not be able to go to dancing or to pre school or do any of the things she loves.
I hug them both and soothe them.
These are hard life lessons and
not your average ones, at that.
Just
normal for us.
I ask them;
“can you give each other a hug?”
“try to understand how each other feels”.
“I’m sorry”, Ivy says, “that you think I get more than you”.
“I’m sorry,” Noah says “that you are not the lucky one”.
They hug and hold hands.
The fight forgotten
but not by me.
I think I will remember it forever.















and so will I.
The way Ivy is looking up at Noah – just beautiful.
Beautiful pic , and I wish no child had to endure what Ivy does. Noah will understand soon enough.
That picture is beyond words.
Oh my, Ivy and Noah are wise beyond their years. And what a beautiful photo!!
“I’m sorry,” Noah says “that you are not the lucky one”.
That brought tears to my eyes.
Gorgeous! What an outstanding photograph! Bless their little hearts!
Another profoundly beautiful post. The photo is sublime too (again). The dear little hearts.
tears
beautiful photo of two beautiful (inside and out) children
Hugs to you and your beautiful darlings
I’m sure you will Tiff. I’m crying (honestly!) at Noah’s line about being the ‘lucky one’.
Sobbing.
They are both such beautiful, beautiful children.
x
Oh my god, tears streaming down my face reading this. What beautiful children you have. xx
Do you think, if we hope extra hard, the universe will give us a break? Cos yeah, I think we need one. I hope you win the holiday, you deserve it.
I just had to explain t my 9 yr. old son that his port and IVIG are forever, and the love his siblings offered is irreplaceable! Your photography is beautiful!
I keep looking at that photo, it’s so moving. What a special bond those two have. You are raising great kids. You are the mum I aspire to be.
Hang in there.
Hugs
No, many of us grownups won’t forget it either.
It is heartbreaking… all of it… but under all of that I am sure… certain… 100% positive that you are raising beautiful caring understanding souls….
Tiff, I just love your blog. I don’t mind who you write for, I’m so grateful that you share these moments with us all. You remind us every time you blog how precious life is and how lucky some of us are. Truly beautiful. I too don’t visit here often enough, but when I do I stay until I catch up on all your posts. xx
Now I’m all sniffly and teary eyed. Such a difficult lesson for such a young age. Our children need such tough lessons in our lives.
Oh these conversations are so hard. We have had similar talks. Why does Emily get so many packages? Well they’re mostly medical supplies, and honestly feed bags and syringes and special formula and catheters are not that fun. It’s hard to be the patient, and it’s hard to be the sibling.
Your two beautiful children obviously “get it”. The photo is amazing!
I keep trying to leave a comment, but everything I want to say seems so inadequate.
So I’ll just say thank you for sharing.
x