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Archive for February 2010

Good News Week.

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The immunologist approved Ivy’s continuation of the IVIG for another six months yesterday.

To say we are grateful is an understatement.

When I look back on everything, we have come a very long way

and to be able to have good news

is lovely, amazing and wonderful.

I am very thankful to all of the doctors

and the nurses

and the countless people who have supported us this far.

I wish I could show you all how much I appreciate you.

Friday Night Confessions (on *Thursday).

Yesterday, I cleaned out the whole pantry, only because I was sure there was some chocolate in there somewhere.

There wasn’t.

So I got a spoon and ate some (all) of the Milo, which I discovered during the pantry strip search, straight from the tin.

Somedays, when I’ve cleaned up the fiftieth boy wee from the floor of the toilet because he missed again, I just wish that Noah had never been toilet trained.

Nappies were so much easier.

On days like that I have often thought about marketing some kind of disposable nappy carpet.

Good for mothers but very very bad for the environment.

Last night, I told the kids I wasn’t hungry and passed on dinner

but later ate an enormous piece of chocolate cake that Maddy baked,

whipped cream and all

and tonight, at the suggestion of cookie dough going with everything I seriously considered putting crumbled up biscuit into the mashed potato.

My bad.

Some of my twitter friends and I have been confessing our, er, naughtiness on a Friday evening and I thought it might be cool to have you all play along.

Nothing major (unless you want to of course) just some light hearted fun.

Would you?

I’d love it if you would.

You could just leave a comment or you could link up to your own confessional on your blog in the comments, if you want

or you could even be anonymous.

I’ve never done anything like this and, you know, it might totally bomb and I may be confessing to only myself and the crickets

but

what are your Friday night confessions (on *Thursday)?

*Thurday because Friday is entirely too far away

and because we have to go to the immunologist tomorrow

and because I could use some light heartedness today.


Normal is normal.

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On Monday Ivy had an echo cardiogram and the results were good.

The pressures in her lungs were within normal limits and her heart rate had slowed to a normal and respectable 80 – 100 beats per minute.

There is still the issue of the strange electrical pathway but the cardiologist organised for long term monitoring and medication for when she is sick, should her heart start making the wild swings between tachycardia and bradycardia that it normally achieves when Ivy’s body is under stress.

On Tuesday we went in for a line change for the IV antibiotics Ivy has had streaming into her veins for the last fifteen weeks.

The doctor there was happy that her bloodwork was good and wondered if we would mind contacting the paediatrician to discuss a review.

Oh great,

I thought, as David punched in the numbers to his rooms, here we go again.

Lack of communication between  doctors and lack of follow up by the paed is why Ivy was on 12 weeks of antibiotics that did nothing to help her kick the infection.

The paed’s grand plans that were made following the letter I had written

had not come to fruition,

even though he had had four weeks to put them into action

and I could just see everything going belly up.

Of course the doctor was not available to speak with us.

As we were walking out of the hospital though,

we happened across the paed,

who said he would examine Ivy then and there.

Ivy’s ear was a hundred times better than it had been four weeks previously.

Still not clear but certainly not goopy.

He made a plan for another two weeks of treatment

and then he told us that Ivy’s last bone density scan had come in within normal limits.

Only just

but still

normal is normal

and today,

I’ll celebrate that.

Kiss Me.

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“Kisses, even to the air, are beautiful” – Drew Barrymore

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Oh the sweetness

of twin love.

Protective,

familiar,

accepting,

intertwined.

The theme this week at I heart faces is Kissing.