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Waiting.
December 7th, 2009 by Tiff

Waiting.

It seems we are all waiting for something.

I have been to the doctor.

She was, as all boonie doctors are in these parts, apathetic to say the least.

I told her my symptoms, told her I was worried.

I told her about Ivy and that I thought it was perhaps stress related.

She thought stress had nothing to do with it.

She looked in my ear, to find no sign of an infection.

She looked in my eyes but could find nothing at all

and so

because I have no visible afflictions (aside from her remarking over and over again about how exhausted I appeared)

she ordered me a hearing test,

you know,

so she could see just how deaf I actually am

and some blood work.

I’m booked in for those tomorrow, amongst taking Ivy to her appoinments.

So you will need to wait with me, my friends.

I am trying to be brave and suck it up but

I have been bad mooded and snappy

with my family

for which I am truly sorry.

It’s that I’m frightened

and I feel as though the whole right side of my head is stuffed full with cotton wool.

Aside from that I am trying to care for Ivy, without the help from her doctors.

In fact I seem to be the peace keeper between the infectious diseases team and the paed.

They are angry because he has not reviewed her at all since she was discharged on the home antibiotic program. They tell me they are waiting  before they do anything else but told me that if they have not heard from him by the 21st of the month, they will just withdraw treatment.

Both parties know that her ear is still discharging, despite around the clock therapy but we have come to a standstill.

The paediatrician has seemingly wiped his hands for now.

Too busy, too close to Christmas, too difficult,

who knows

and so I am waiting for him too.

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26 Responses  
Tricia (56 comments.) writes:
December 7th, 2009 at 11:34 am

I will be praying for everyone’s doctor appointments tomorrow. Hang in there.

Nat (2 comments.) writes:
December 7th, 2009 at 12:34 pm

I don’t know what to say, so I’ll just send ((hugs)).

Laura (3 comments.) writes:
December 7th, 2009 at 12:39 pm

Oh, honey. I’m SO feeling for you tonight. I’m dealing with my own issues because of delaying caring for myself. I am praying for you now. and for the doctors. and I wish I could give you big hugs…

Vanessa writes:
December 7th, 2009 at 1:17 pm

So sorry about your health and Ivy’s situation but so glad you got to a Doctor. Sending lots of good wishes and positive thoughts your way.

Kathleen (40 comments.) writes:
December 7th, 2009 at 1:39 pm

Tiff, keep your faith strong. I know it is hard, but for each trial we go through we become stronger and stronger. I have already seen this in your journey.

God will not forsake you. He promises He will never give us more than we can handle. He is not only with you, He is carrying you and Ivy right now. Close your eyes and feel His strong arms around you. They are there. I know — I have had to do the same thing through this horrible journey after my accident. My life is getting better with each day, and He has given me so many blessings along the way. He will do the same for you and Ivy.

Hugs from Kathleen in Memphis to you, Ivy, and your precious family too

river writes:
December 7th, 2009 at 2:37 pm

Too busy, too close to christmas, too difficult. Gaaaaah!!! Does this man never learn?? Ivy’s problems DO NOT take a break because it’s christmas. And it’s not as if he didn’t know this was coming. For heaven’s sake, we have a christmas EVERY SINGLE YEAR!!! He’s had plenty of time to formulate an action plan to see her through the holiday. Why hasn’t he? I’m so mad at him I could rip off his ears and stuff them down his throat.

Brenda (45 comments.) writes:
December 7th, 2009 at 2:39 pm

I will be praying for you Tiff. Hugs…

SassyCupcakes (40 comments.) writes:
December 7th, 2009 at 3:19 pm

This is so unfair. I wish there was something we could do to help.

Veronica (43 comments.) writes:
December 7th, 2009 at 3:47 pm

The waiting is the hardest. Sitting here with you. xx

Jeanette (230 comments.) writes:
December 7th, 2009 at 3:50 pm

Good luck with those tests.
My oath that doctor makes me angry, how can he do NOTHING! Hope he does something soon.

frogponsdrock (20 comments.) writes:
December 7th, 2009 at 7:02 pm

and I am sitting next to Veronica xxx

Bri (28 comments.) writes:
December 7th, 2009 at 7:21 pm

*hugs*

My 3 yr old was looking at me read your blog and she saw a picture of Ivy. She wanted to know if Ivy could be her friend and if we could go and visit Ivy : )

She calls her “Eye-zee”

: )

PlanningQueen (57 comments.) writes:
December 7th, 2009 at 9:32 pm

Oh my, I wish you weren’t feeling so unwell. I also wish that you didn’t have to wait for Ivy to receive the treatment she deserves.

Martin (27 comments.) writes:
December 7th, 2009 at 9:41 pm

Mind yourself Tiff.

Marylin (120 comments.) writes:
December 7th, 2009 at 11:39 pm

*hugs* sending you lots of love and ~~~get well vibes~~~ xxx

lceel (304 comments.) writes:
December 8th, 2009 at 12:28 am

I’m glad you’re getting yourself looked to - but I am frustrated by what I see here about the Pediatrician. (we spell it differently than you, apparently) Does the Paed have an email address? Perhaps a few thousand emails from an irate Internet might move him off his ass.

MidLifeMama (17 comments.) writes:
December 8th, 2009 at 2:18 am

I am not a doctor, but have in the past experienced some of the same symptoms you have, and have found that I suffer from TMJ, Temporomandibular Joint Syndrome. I clench my teeth so tightly at night when I sleep I cracked my own teeth. I have permanent ringing in one ear, although have suffered no hearing loss. However you can suffer nerve damage and hearing loss as a result. You can have all kinds of crazy symptoms with it, including a swelling on one side of your face and head, nausea and tingling issues as well as visual disturbances. Stress causes the clenching and grinding, and the rest is fall out from that. I wear a mouth guard at night now, which I purchase at my local pharmacy but you can also get expensive ones made by your dentist. At least you can here in the US. But since I end up having to replace the guard periodically because I bite through it, I figure the cheaper option is better. You might check out TMJ as a possible source of your physical symptoms. And what is that pediatricians problem????

Goji (1 comments.) writes:
December 8th, 2009 at 2:35 am

Hugs!

achelois (35 comments.) writes:
December 8th, 2009 at 7:53 am

Just a note to send support from the UK. Take care.

peskypixies (64 comments.) writes:
December 8th, 2009 at 8:22 am

sigh..hurry up and wait…..dont you hate that???

I am sitting here with you too.

as for the paed………..well dont get me started!!!!
may the fleas of a thousand camels nest in his armpits!!!!!

Jennette writes:
December 8th, 2009 at 10:05 am

So unfair, on both accounts.
I’m so sorry.
HUGS

Mum writes:
December 8th, 2009 at 12:06 pm

Maybe the ENT guy could liase and authorise continuation with the infectious diseases people, after he has seen Ivy’s ear discharging still tomorrow, in the absence of anything further from the paed. Possible? I’m also hoping your bloods & hearing test results are not too stressful for you but enough to prompt the necessity for further investigation. Here’s hoping for a satisfactory end result, sooner rather than later.

Kathleen (40 comments.) writes:
December 8th, 2009 at 1:12 pm

Tiff, been thinking about you and Ivy all day and praying. I sure hope you got some type of news — and hopefully good news. Remember, God is carrying you now. He is by your side and watching over both of you.

Love Kathleen in Memphis

Amy writes:
December 8th, 2009 at 7:26 pm

I want to smack that GP for you. What a turd of a Dr. You get that, I suppose. Hoping the tests help in some way…
I think I’ve already asked you this, but I’ve forgotten… Can you see a Sydney paed? Someone who’s not the only half-decent dr within a 100km radius who may be able to give Ivy the attention she needs? I know Ivy luffs M, and yes, he knows her best, and yes, Sydney is a long way away for regular visits (just ask Immy I guess) so maybe it’s not realistic. I just can’t help but feel that if you had some staff at CHW backing you up there’d be a lot more happening for Ivy. But maybe I am just naive.

MissyBoo (34 comments.) writes:
December 8th, 2009 at 9:52 pm

Hugs xxx

Hyphen Mama (296 comments.) writes:
December 10th, 2009 at 10:34 am

Dear lord, Tiff! You need an advocate for you and for Ivy. Like a personal assistant- I know, because everybody can just get themselves a personal assistant, like getting a coffee maker at the store??? You need somebody to take the reins for a short time… to make appointments and keep track of appointments with Ivy and help advocate and stand in the Paed’s office with paperwork (or whatever is appropriate) in hand until he SEES YOU AND GIVES YOU RESULTS. And to give you some time to find out what is not right with yourself. Life is not supposed to be THIS impossible. I’ll be right there and I’ll bring chocolate.

I’m so sorry Tiff. {{HUGS}}

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