As you can see, Ivy is feeling loads better.
Bored even.
What you can’t see is that her ear is still not clear.
What that means is that if Ivy were to leave the hospital now,
without long term antibiotic coverage,
we would bounce back with a very sick girl in a matter of days.
Not a great option.
What you also can’t see is the comedy of errors that has gone on here.
Yesterday the paediatrician came in
and confirmed that Infectious Diseases had given the thumbs up for Ivy to have home antibiotics again
and he suggested that if there were a long waiting list for the Out and About Program,
it would be possible for the hospital to provide the medicine and equipment so that I could dose her at home until a spot became available
then he went to Sydney.
Later that evening the nurse came in to tell me that there had been no referral ever made for Ivy
and that they hadn’t heard from Infectious Diseases
or the Paed
or his team
and that the waiting list was huge.
As in enormous,
no chance of getting onto the program this week.
What’s more, was that nobody had any idea of what the paed actually wanted in respect to me taking home the meds.
They felt that unless Ivy was on the program, there was no way home antibiotics were possible.
I got upset
Ivy and I are going crazy here (okay, maybe just me, the girl has amazing patience, where I do not )
and the nurse went to the evening shift doctors
who said it wasn’t their job to write a referral or to organise a discharge
and that it was something that the day doctors needed to do.
Yes,
except they should have done it three days ago.
So now we sit
with the paed in Sydney
and doctors who
a) have not done their job in the first instance and
b) are not likely to do their job or
c) will pretend to do their job but really won’t
because the paed is in Sydney and while he’s there
we are out of sight and out of mind.
It seems the front end never knows what the tail end is doing and so we walk in circles.
Meanwhile our family is torn apart and we are juggling children between grandmothers.
Everything is on hold.
David asked me what is stopping us from just picking her up and leaving.
Um
the simple answer to that is
doing that will ultimately hurt Ivy.
I’m pretty cross.
It’s another day in limbo, another day of being cooped up in a small room (she’s not allowed out because she’s considered infectious).
Oh, I know I should just be incredibly grateful that Ivy has this option at all
but seven days and four walls makes me snarky.
Sorry.
On top of that they are talking just two weeks of home antibiotics.
No matter how many times we go through this it is always the same.
It’s like hitting my head against a great,
big,
very dense brick wall.
Ivy will need at least six weeks for there to be any effect at all,
any chance of beating this.
In my opinion, of course.
Can’t they see?
Two short weeks of good health
followed by an acute relapse
five days in while she recovers
another four to get us back onto the home program they just discharged her from,
that’ll take us to Christmas.
Yeah, I know that I sound negative
but seven days and four walls will do that too.
Sorry.
