I have been so sad for Ivy these last few weeks.
We have been pushing the Prednisone down,
trying to get her to a maintenance level, where she is not as adrenally suppressed
when we got to 10.5 mg she blistered.
She was sick at the time, so I just thought it was because of that.
I pushed her steroid up for three days and the blisters started to resolve
but when it was reduced again the blisters came back worse than ever.
Lather, rinse, repeat.
At 15mg and while I was away, the blisters just kept on coming, in the same sort of cycle that she had
before we had a diagnosis,
before the Pred,
before the IVIG.
She has been sad and in pain and last night, while she was crying on the lounge, after a new crop of blisters had appeared,
I felt so, so low and sad for her.
This morning she has been still and quiet, on her trusty couch.
Just waiting, like me, for the next IVIG infusion.
The last few months have proved to be difficult.
I won’t lie.
Her energy levels have been down, she has been picking up infections again and meltdown week has been hard.
We have been pinning everything on the increased IVIG
but it had not been forth coming
until today.
This morning, the immunologist called.
Ivy has been approved for the increase.
Her infusion is on Monday coming, then the next will be three weeks following.
On her 4th birthday.
It’s a bit sad that she will be in the hospital on her birthday
but, honestly,
getting the increase is the best gift she could hope for.
It’s going to be a really great Summer!
