Archive for September 9, 2009
IVIG anniversary.
It’s been a year.
How do you celebrate something like this?
How can I describe how this little medication has changed Ivy’s life?
How can I tell you how thankful I am?
When the blogging community came together to support us.
When the doctors finally made a good decision.
That we went from constant, overwhelming infection, hospitalisation and isolation,
to preschool
and family outings
and no pneumonias.
The Intragam has interrupted lung disease and slowed the pulmonary hypertension.
Okay, so we have hit a stumbling block lately
and there is more applying and appealing going on
and we have had a wild ride with infection these last few months
but
life is good, so much better than what it was
for Ivy,
for all of us
and so
it is a celebration.

It’s National Blood Donors Week this week.













