I knew it would happen.

I didn’t want to be all bitter and twisted and so I let my hopes build that Ivy’s immunologist would come through and that she would go to the three weekly IVIG.

She phoned last night to let us know that the National Blood Authority had denied Ivy the increase.

Apparently we have to prove that she needs it.

This lends itself to the question of  how?

How are we supposed to prove such a thing?

Her trough levels are already low at the end of the month so what more do they need from her, from us?

How many more hoops will we have to jump through?

Oh, there will be appeals and applications and more tears and gnashing of teeth, just like the first time but

the next question is;

do we really want to?

I am tired.

Ivy more so.

Everyone is exhausted from the emotional turmoil.

It would be so easy to put down my gloves right now and there are some days I want to,

then I remember that it’s Ivy I’m fighting for, so I raise my guard again and prepare for another round.

It really takes it out of you, though, when you swing from complete hope to despair all in 24 hours, so my final question is this;

Is there a way to manage this without needing to up her dose of Intragam P,

without taking anything away from Ivy, of course?

Another avenue, a different game plan, if you will.

Is it possible to have a rock solid management plan, so that if and when Ivy becomes unwell, we can get her the treatment she needs and get her back to normal life as soon as possible?

I’m hoping so

because, in the end, that is the most important thing;

that Ivy has a good and happy life.