The immunologist is a tiny Asian woman, seriously intelligent, whose thought processes move faster than our dog when he’s offered a sausage.

That’s pretty fast.

She throws questions and ideas at us, like a spinning fast ball and I feel as though I am never going to be able to catch up

but catch up, I do

and our ultimate understanding is that Ivy can have a trial of three weekly IVIG.

I’ll let that sink in for a little while, will I?

So, this increase is supposed to start tomorrow, except we haven’t heard from either the immunologist or the paed to tell us to come in.

I’d love to tell you that I was sure that everything would come to fruition and, if not this month, then definitely next month we would be going to third weekly

but I don’t want to get your hopes up, or mine, for that matter.

I mean, we were told Ivy could have the increased IVIG, by the same immunologist, once before and then it was denied.

We’ll see what happens, shall we?

Instead, let me show you some photos  - messages that the girls and I spent a large part of Saturday writing for Operation Beautiful. They make me feel happy and hopeful.

Even Ivy and Noah got into the act;