oh Tiff,
you just can’t win, can you??
you are damned if you do.and damned if you don’t..

hoping the paed can work something out for you tomorrow…

be gentle with yourself…….I’ll be thinking of you.
hugs

tiff, thanks for your prayers for my cousin. now it is my turn to send some your way. i hope miss ivy gets better soon and that the doc and grandparents lay off you a bit. i know how hard life can be at times, not near as interesting as yours has been, but difficult still at times.

Remember God does not allow any challenges that we can not get through with His help. i am praying for blessing for your family this week. God is our ever present help.

love and hugs to you

Oh sweetie. I’ve got nothing, except hugs. I hope the Paed can do something for Ivy girl tomorrow. xx

Tiff, you are an amazing woman. Just want to remind you today that no one else could possible mother Ivy better than you. xx

Tiff, you know that none of this is your fault. If you had jumped up and down, the paed more than likely do what he wanted anyway, and there would be undue tension. He should definitely allow you to question without becoming defensive though

Hugs to you, you are doing a marvellous job xoxox

Oh sweety, you’re doing everything you can. I’m sure your family do realise that, they just get upset and you’re in the crossfire?

((hugs)) You’re awesome. An amazing mother to your children, don’t you ever let anyone else tell you otherwise! xx

Gosh …what can I say that hasn’t been said. Tiff ,you are doing the very best despite mixed medical opinions. (hugs)

Yuck yuck yuck. I’m so sorry. I was hoping to hear she’d be infection free for longer. I’m sorry you’re getting hassled all round. As a mother, you have the hardest job in the world (as well as the most rewarding) and from what I can see you are doing a great job.

Oh Tiff, I am so sorry for what you are going through. I can 100% relate to it. We are dealing with all of that right now with Sam’s break from the IVIG. Everyone keeps asking me when I am going to put my foot down and get him treated… Anyways just wanted to say I am praying. Is there anyone you can get a second opinion from? Someone who has never seen or heard about Ivy? That you could go there and tell her history (PICC line included) and then share your thoughts concerns? We are looking into a whole new hospital for Sam for our next opinion.
Praying things get easier, that the ear infection goes away….

My thoughts and my prayers, as always, are with you. Be strong. Be patient. It will all work out.

I hate that on top of everything else you have to worry about the politics of agreeing or disagreeing with the docs. You and Ivy do not need that added stress. Can you get any mileage from a polite “I told you so” to the paed tomorrow?? ((hugs))

Shaking head here.

Oh no!! I was really hoping you’d have a bit of a break

Darling Tiff… On the bad days, you are the only thing right in her world. You and her immediate family.
Everyone else is just white noise.

Ah Geez! You and Ivy just can’t get a break can you? Get back to the doctor. Maybe now he’ll see the PICC line needs to be in longer.

My daughter had lots of ear problems. You really need to get this checked out before something worse comes of it. My kiddo’s ear probs went on for years!

I’m sorry for you guys! I hope Ivy is ok. I’m new here and it has taken me a few visits to take it all in. You write so beautifully - I feel the pain, joy and love in every story. And what an amazing story it is. Thank you for sharing.

How disappointing, annoying and a whole bunch of other words

Yes, what Guera said!

Oh, and it might be time to enlist the universal “stop” hand signal (both hands up, all fingers splayed) and tell others “Listen, I’m not the enemy. Stop blaming me. I realize you all have frustrations and disappointments, but I’m not your punching bag. I’m doing exactly as the professionals are telling me to do, because I cannot parent from a jail cell. Thankyouverymuch.”

Sorry it all seems to come back to something you MUST have done wrong. As if!