All fingers and toes at the ready.

February 2, 2009 | Author Tiff

Ironically the infusion went in too fast,

they forgot her premedication

and so her last IVIG is seemingly going to end like her first.

A whilrlwind of adverse reactions, tightening themselves, coiling snake like, a combination of good air and bad, creating a twister.

The sweating started early this time…

We’ll see.

I’ve given her everything I can to stop the bad night in its tracks.

Phenergan, Panadol, Neurofen, Prednisone doubled.

Whether I have suceeded or not, we will have to wait and see.

Her six month trial is up.

Today was her last.

It has changed her life.

We have to wait now to see if the ivory tower guy will gift us with a continuation.

It could go two ways.

Either it will be a very very good Winter

it won’t.

I know which one we are hoping for…

all fingers and toes at the ready.

Crossing is required.

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Posted in coping, cranky, Health, illness, hope, IVIG, Ivy - girl, worry | Tags: hope, Intragam, IVIG, six month trial.

28 Responses to “All fingers and toes at the ready.”

Veronica (623 comments.):

February 2, 2009 at 20:18

Everything crossed. Everything.

Oh, except my eyes. If I crossed them I wouldn’t be able to read and comment, so it would defeat the purpose of the crossing.
Mr Lady (76 comments.):

February 2, 2009 at 20:30

I have REALLY long toes. I can cross all of them.
river:

February 2, 2009 at 20:32

Aaargh! They did it too fast again. Did they not read her charts?? Stoopid doctors…..
I hope tonight is not too bad for you and Ivy, hopefully the meds you’ve given will allow her to sleep.

I have a good feeling about the continuation, but I’m crossing my fingers anyway.
Guera (151 comments.):

February 2, 2009 at 21:07

You can count on us to have fingers, toes, legs and eyes crossed. I so hope she gets more. xoxo
Jeanette (275 comments.):

February 2, 2009 at 21:23

Hope it goes well tonight.
I really really pray that the ivory tower sees the light and grants you a continuation.
Barbara (156 comments.):

February 2, 2009 at 21:25

I’ve got as many things crossed as I can think of. I hope she’s ok and I really hope your ivory tower guy comes good.
Alison (3xkewl) (141 comments.):

February 2, 2009 at 21:27

Everything crossed here, too.
Hey…. I just discovered it is very hard to type with crossed eyes.
Kelley (239 comments.):

February 2, 2009 at 21:41

oh sweetie, yes, everything crossed here.

And six months? I can’t believe it is over already!
Fe (60 comments.):

February 2, 2009 at 22:45

Everything crossed for you, Tiff. Everything. Is there anything we can do to help get the continuation? Another petition maybe?

I so hope she, and you, have as peaceful a night as possible.

xoxoxox
Jientje (80 comments.):

February 2, 2009 at 22:53

Keeping everything crossed for you too, Tiff! Hugs xx
Marylin (120 comments.):

February 2, 2009 at 23:44

Keeping everything crossed for you sweety. Do you know when you’ll find out either way?

((hugs))
badness jones (70 comments.):

February 3, 2009 at 02:16

I’ve got every extremity crossed that I can Tiff. Good luck, and hugs to you and sweet Ivy.
Hyphen Mama (316 comments.):

February 3, 2009 at 04:40

Where is the petition we’ll all sign to keep the pressure on them?

I hope your night went well, according to my calculations it’s early morning your time.
lceel (354 comments.):

February 3, 2009 at 04:41

Stoopid gits. You’d think that they’d get it right by now. Hang in there. And if need be, we’ll get Von to warm up the Internet Petition again. They need to know that we ARE paying attention and watching.
Xbox4NappyRash (314 comments.):

February 3, 2009 at 06:48

Best of luck.
Widdle Shamrock (101 comments.):

February 3, 2009 at 07:15

That’s gone quick !!!!

Here’s hoping it is all that Ivy needs and here’s hoping for a normal/usual winter for you with no emergencies

HUGS
Suzie (65 comments.):

February 3, 2009 at 07:52

I hope the night was ok. Im sending healing thoughts your way
Blossom (88 comments.):

February 3, 2009 at 14:45

damn damn damn..where did 6 months go???????

keeping all my bits xed for you and sweet Ivy.
Kathleen (26 comments.):

February 3, 2009 at 15:17

Tiff – If the trial cannot be continued, try contacting the drug company directly and asking for a compassionate use basis. Most of the time they are very open to this. What company produces this, do you know?
Childlife (224 comments.):

February 3, 2009 at 16:17

Oh, poor little cutie! Will they never learn?!!? I’m keeping everything crossed for you and I’m ready to picket if need be — just say the word! Prayers for another good winter — you all deserve another and so much more.

((((hugs))))
hoppytoddle (36 comments.):

February 3, 2009 at 16:29

Am as requested. In through the nose, out through the mouth.

Big Hugs with Back Rubs for you & Miss Ivy.
greenwords (1 comments.):

February 3, 2009 at 17:21

Crossing mine very firmly. Good luck!
Amy:

February 3, 2009 at 20:16

Probably obvious, but I’m rooting for the “good winter”. Hope last night didn’t bite too much. xx
Vanessa:

February 3, 2009 at 23:00

Six months already?!!

Everything crossed here. x
Holly (100 comments.):

February 4, 2009 at 02:17

I guess it’s all over by now – I’m behind again – but I hope it didn’t go as badly as the first one. One would think by now they would know what they were doing, and this wouldn’t happen. Hrumpf.

Keeping everything crossed though that the powers that be approved more treatments.
Miss Ash (89 comments.):

February 4, 2009 at 04:47

I’ve got all mine crossed.

Sending you my prayers and love!
Kat (90 comments.):

February 4, 2009 at 08:51

I know which one I’m hoping for, too.
Trish (487 comments.):

February 4, 2009 at 12:24

Hope
Believe
Cross
Pray
hand on my heart everyday !

All fingers and toes at the ready.

28 Responses to “All fingers and toes at the ready.”

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