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Decisions…
January 16th, 2009 by Tiff

ivymummy.JPG

This  April, my first born son would have been celebrating his fifth birthday.

He would have, except that he died, when he was five days old.

Five years is a milestone.

A milestone for a little boy,

A milestone for a mother,

A milestone in grief.

Five years, all the books state, is when most parents, who have lost a child feel wholly normal again.

It’s when they are able to let things go, live and let live and all that junk.

I’ve yet to meet a textbook griever.

I am certainly not one.

Almost five years in, I have days, months of absolute clarity, of happiness and joy, when my son, William is just a whisper in my thoughts and then I have days when he is all I can think about.

The pain has faded, the gaping wound that was once open and raw is now mostly healed but if it is knocked,  will bleed easily still.

This is the life of a mother who has lost and I accept it.

I don’t think I will ever be fully healed.

I am not text book because, in other’s eyes I have taken way too long to find peace.

I am not text book because I grieve William when I grieve Ivy’s illness, I grieve differently because I had babies almost too soon after his death.

Everything is intertwined.

The whole NICU experience, the difficulties, the depression and absolute hopelessness I feel when Ivy is acutely unwell and I can do nothing to help her.

Everything is weighted on his death.

+++

Last September we went away. It was the worst ‘holiday’ I have ever had.

I brought Ivy into the hospital the day after our return with pleural effusions and raging pneumonia.

It was very bad.

After everything had settled and Ivy was stabilised I lamented that I would never ever go away from our hospital or our paediatrician again.

I cried into the night that my life had become a series of terrible events and to go anywhere, do anything was to tempt fate.

Yeah, it was a pretty horrible time.

+++

Here’s the thing;

In April my son should be turning five.

He’s not here.

He’s gone but I want to celebrate him.

I want to sit on a beach at dawn and think about him.

I want to do it with my family.

So, I’m going to.

Today I made a decision to embark on another holiday.

Five days, four nights on an island.

There is no hospital and I am not even sure if there is phone coverage.

It’s booked.

William’s birthday falls just after Ivy’s scheduled** IVIG day and I am going to risk it

because five years is a big deal.

Originally posted at Five Minutes For Special Needs.

** As long as we get a continuation of treatment.

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29 Responses  
tara @ kidz (1 comments.) writes:
January 16th, 2009 at 8:28 am

I have a friend who lost her 12-month-old in a drowning accident last year. I have learned much from her about the grieving process.

She shared this article that has a beautiful analogy about the grief after the loss of a child, and how that is a lifelong process. Please take a minute to read it. I think it is so fitting for you.

http://www.reviewjournal.com/lvrj_home/2006/Feb-26-Sun-2006/living/5987837.html

I’m so glad you’re giving yourself the gift of a getaway, and it’s more than that - it’s faith that everything will be okay when you return.

Tracey writes:
January 16th, 2009 at 8:40 am

Oh, good for you! That is fantastic. More details, please.

Dina (89 comments.) writes:
January 16th, 2009 at 8:48 am

I think it’s so ridiculous that people have put a time limit on grief. Even giving averages is counter-productive.

Grief is different for everyone.

I think it’s awesome that you’re doing something positive with your grief–honoring your son with a holiday. That’s very beautiful.

I think it’s beautiful that you mention him often. I think it’s beautiful that he’s still an important part of your life.

Turtle and the Monkey (4 comments.) writes:
January 16th, 2009 at 9:20 am

5 years. I often wonder how I will feel about my sweet Noah at the five year mark. Throw away the idea of textbook. You are grieving and celebrating his life just as you should. You offer me hope for what my journey will become.

I think it is wonderful you are taking a holiday to celebrate William’s birthday. I hope it is peaceful and healing.

Jennette writes:
January 16th, 2009 at 9:29 am

Sounds like the perfect way to honor your son’s memory. Go, sit on that beach, remember, shed tears, relax…and make some new happy memories with the kids you can hold.

I can’t imagine it really gets any easier….you just find better ways of coping.

HUGS

Fe (60 comments.) writes:
January 16th, 2009 at 9:58 am

Oh Tiff I’m so pleased that you’re doing this for you and for your family. There is NO such thing as text book grieving. None. You are an individual and you will grieve as an individual.

HennHouse (Karin) (76 comments.) writes:
January 16th, 2009 at 12:06 pm

Grief and celebration are intertwined. Just like everything else.

Praying your holiday is everything you need it to be and SO MUCH MORE.

julie (76 comments.) writes:
January 16th, 2009 at 12:07 pm

The holiday sounds like a good thing for you and your family.

“Supposed to’s” are my most hated thing in the world. You are supposed to deal with William’s loss in a tidy way, so that other people aren’t inconvenienced and uncomfortable. So that they can check the block, “okay, Tiff is fine now, because it’s been five years and that’s long enough.”

Screw them. You are ready to stop grieving, or get back to normal, or deal with it, or whatever, when you are ready. It sounds to me like you and your family are dealing with it, and have as normal a life as you can, as a family who has been through the wringer endlessly.

There are people who have been through nothing, who have suffered nothing, who don’t get it. Who think they have the right to tell others how they are supposed to live. These people, who may be very kind in other ways, who may be great people in other ways, these people suck. Listen to the people who mean the most to you, whose opinion matters to you. The rest of us can go pound sand.

badness jones (55 comments.) writes:
January 16th, 2009 at 12:29 pm

Have a wonderful holiday - and I don’t think that those ‘textbook’ grievers have really stopped grieving. I think they’ve just learned that that is what’s expected of them and they keep it inside. Hugs.

Blossom (88 comments.) writes:
January 16th, 2009 at 12:32 pm

Five years IS a big deal…..

and no one can plot grief…………no one.

Go and watch that sunrise……with your family and remember your sweet boy.
gentle hugs

Momma Chaos (5 comments.) writes:
January 16th, 2009 at 2:04 pm

Good for you! I hope you have a peaceful holiday to celebrate William. No matter what the books say, everyone grieves in their own way. There’s no such thing as a magically time limit when you will feel instantly better.

Hugs

Jeanette (230 comments.) writes:
January 16th, 2009 at 4:57 pm

Hope your holiday is perfect this time. 5 years is a huge deal!

hoppytoddle (36 comments.) writes:
January 16th, 2009 at 5:06 pm

It’s because you know what loss truly is. You know what it would mean if. If. Not will. It isn’t even an if most days. But even as just a maybe, it means more, because you already have a load of grief. You have an account. You don’t want to take more of yourself, of your blessings, to put into that account. That is how I think of it for you. I know I’m not, but when I put myself in your shoes, it’s what I feel.

I guess I know a little bit. I had a miscarriage. I built up an account of love, when I didn’t know I had any, to give to a little person who was no longer there. But lots of us have had that. & it isn’t the same as Ivy. Or WIlliam. It’s is the pain that is the same.

Regardless of if it is the safe thing to do under anyone’s standards, how ridiculous is it that you shouldn’t have one measly holiday. For christsakes, it is a pretty simple justice, I say.

river writes:
January 16th, 2009 at 5:23 pm

Enjoy your little getaway and don’t forget the sunscreen. Build sandcastles, daydream, sing happy birthday to William. Everything will be fine.

lceel (305 comments.) writes:
January 17th, 2009 at 1:40 am

Tiff, take the textbook and throw it away. There is no such thing as ’standard grief’. December 10th, 1980 is as sharp and fresh in our minds as though it happened yesterday. The day our Sarah Katherine died. The day she came to the world as a ’stillborn’. She would have been 28. The moments of clarity last longer. But she is always, always there.

Miss Ash (51 comments.) writes:
January 17th, 2009 at 3:46 am

I just want to wrap my arms around your heart and squeeze until you sigh with relief.

Sending you much love,
Ash

Suzie (65 comments.) writes:
January 17th, 2009 at 5:08 am

You’re allowed to take as long as it takes. I think its good though you are going on vacation

Hyphen Mama (296 comments.) writes:
January 17th, 2009 at 5:38 am

5 years IS huge. For you, for your entire family. I’m glad you’re taking the trip.

Xbox4NappyRash (314 comments.) writes:
January 17th, 2009 at 6:14 am

It’s a huge deal.

Take the time.

Flicka (53 comments.) writes:
January 17th, 2009 at 6:19 am

What a brave decision, dear. I hope you have a lovely time.

Five years to get over the death of a child? What are they, insane?

My mother had a miscarriage before she had me. It was relatively early, within the first trimester. A year or two ago, she called to tell me that she and my father were watching a movie, Penny Serenade, I think. They got to the part where the wife loses the baby and she looked over to see tears running down my father’s face. When she reached over to take his hand, he spoke about that first baby they’d lost, the one before me, over thirty years ago. How much it still hurt.

Five years? Not even thirty, not even a lifetime.

shygirl (1 comments.) writes:
January 17th, 2009 at 6:50 am

love the article from the first comment. You are teaching me much about how to keep lost ones a part of the family. Enjoy your holiday. hugs.

Veronica (477 comments.) writes:
January 17th, 2009 at 9:37 am

5 years. Such a long time and yet, no time at all. I don’t think losing a child is something you can ‘just get over’. Not at all.

I think the holiday sounds like a beautiful idea. I will be keeping everything crossed that Ivy gets a continuation.

m & B writes:
January 17th, 2009 at 10:41 am

Throw away the textbook, its your grief and nobody can tell you how long that will or won’t last. You are entiltled to it, and with a chronically ill child its no wonder its enduring.

Five years is a big deal, and I love that you’re going away to honour William. Sitting on a beach is a wonderful place to do it.

Corey~ living and loving (25 comments.) writes:
January 17th, 2009 at 11:17 am

Much love to you and your grieving heart. Ihope your getaway gives you some peace you deserve, and honors the past five years.

Amy writes:
January 18th, 2009 at 7:56 am

Wow. 5 years. I hope it is a wonderful holiday for you all.

Widdle Shamrock (101 comments.) writes:
January 18th, 2009 at 11:42 am

Every year is a big deal.

The milestone years are harder.

5 is a milestone year,

And Tiff, stuff everyone and trying to be a textbook griever, do what YOU need to do.

For me 10 years was a biggie, so will 13, 15, 18, 21, they could have been married by now.

Grief is a part of our lives now.

Hugs

* TONYA * writes:
January 20th, 2009 at 4:15 am

you simply cannot put a time limit on grief. Each person grieves differently. I cannot imagine what you went through 5 years ago. What I do see is that you love your children tremendously. Grieve for as long as you want. I hope you got through Friday okay. Big hugs.

fancy feet (100 comments.) writes:
January 20th, 2009 at 6:04 am

What a beautiful thing to do. This way of honoring him and taking the time to go.

Holly (125 comments.) writes:
January 25th, 2009 at 7:45 am

Grieving, like everything else in life, is different for everyone. Just like some who shed no tears, it certainly does not mean they feel less pain. Those who are ‘over it’ sooner or later – neither feels less pain, just deals with it differently.

I think it’s great that you are taking a chance, on so many things, so many factors, and I hope you look forward to this break, and return with even just a tiny bit more peace in your heart. You so deserve much, much more. But baby steps to a peace in your heart and soul will do.

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