Breathe.
We spent a long time with the paed yesterday.
He was serious and thorough.
Is there clubbing?
Yes. There is.
Is there cause for concern?
Yes.
The girl has lost more weight and she is anaemic again.
Will we see a respiratory specialist this side of 2010?
Yes, he will push for an appointment
because she might have bronchietasis.
He suggested some other things as well but these are too scary to think about, right now.
I told him; don’t let anything happen to her
and, with the girl upon his lap, he said he would do the best he could.
Oh Tiff. If there is anything…xxx
(((HUGS))) Hope you get to see a specialist soon.
You guys are in my prayers.
I don’t even know what to say. I have chills all over. I don’t even know the seriousness of all of this, I am hopelessy – and have been wonderfully, blissfully allowed to be – so totally ignorant about all of this. You are in my thoughts more than ever now. I’m here in any and every way for you, but wishing I was THERE for you.
Oh sweetie. (((hugs)))
Sending prayers up on your behalf. And for the paed. That each phone call he makes and thought he has is directed by the One who knows what tomorrow brings.
I know that it is so hard. Last week, we saw our specialists, and 2 of my 3 who were trialing off IVIG, are going back on. While I knew it was coming…..it still hurts, bc, somewhere in my head…..I was hoping he would say it was all better, isnt it great!! They’re cured! But instead…….just more news that their lives are not normal, and probably wont ever be, and the looking down the road is what upsets me, I think.
Another thought……..my youngest CVID boy was frequently anemic,even while on iron. Once allergy tested, he was found allergic to milk, and the allergist felt that caused the anemia. Once he was off milk……he has never been anemic again. And he gained weight.
I read your blog and wish you could be in the states, and able to see whatever drs you need, w/o waiting like you have to. And I remember to be thankful that we can……sometimes, I forget not all of us have that luxury.
Ivy is so beautiful……she really is. I hope you get some answers soon.
You know my thoughts are with you. And so is my ear (or eye, since it’s email). I’m with you from halfway around the world on this one…*hugs*
Hugs to all you guys
Really hoping Barnaby comes through with the goods.
What a tough job that doctor must have. I’ll pray for him, too.
I thought the Bronchietasis was already confirmed? I certainly hope she gets to see a specialist a lot sooner rather than later.
Sending lots of love to you all. xoxox
(((hugs))) lots and lots of hugs and good energy from me to you.. lots and lots and lots xxxxx
Oh .. HUGS Tiff, oh how I wish there was something I could do.
All I can do is send you all the positive energy I’ve got to help your little Princess.
Please know that you and your family are in my thoughts and prayers, Tiff!
BIG HUGS to all of you. I can’t imagine. It makes what I’m going through seem so minor. ((((((( Tiff )))))))) xoxox
You are constantly in my prayers. And Ivy. Always.
I don’t know what to say… I want to reach over and give you a big hug. I feel so useless just letting you know I’m thinking of you and Ivy!
((((Hugs)))) Sweetie xxx
My thoughts and pryers are with you ((hugs))
You’ve got so many prayers coming your way!
Keep in mind that he WILL do his very best.
All my best.
Oh tiff, I just burst into tears. I feel your pain as a mother and his helplessness as a pediatrician.
Oh Tiff, you know you are in my heart and prayers.
I have been thinking about what the Paed would say and do all week.
((hugs))
Such a tough time for Ivy and for you. It must be so hard not to spend all your time worrying.
Oh no. All I’ve got is prayers… so that’s what I’m sending.
Prayers.
And virtual {{hugs}}
5 Minutes for Special Needs is such a wonderfully place because it introduces me to people like you! Thank you for encouraging me. That’s actually what I tried to start doing for you, but then as I wrote I became a sobbing mess!
I’m sorry to hear that Ivy is having to be tested for CF, only because that means she has been experiencing things we would never want our children to have to experience. I know it’s awful to think about the test being positive, but if in fact she has it the last thing you want is to go one more day with it undiagnosed. And the CF community is wonderful and supportive. I will be praying for you and your family and checking your blog for results.
No words, Tiff. Just hugs. And prayers. Lots and lots of both…