Home


About


William


Ivy and Noah


Pemphigus


Donate Blood


Dear Donor


Reviews by Tiff

Subscribe Follow me on Twitter


AMB Badge


FYBF


This blog designed by Rah!Creative

Archives
Categories

Archive for October 2008

Watching and waiting.

So, he called late on Friday evening

and we have a plan.

I like plans.

Most of which is watch and wait.

Her heart; more ecg testing.

Her lungs; the pulmonary hypertension, he feels, is due to the recurrent infection, the pneumonias and it will either get worse or it will resolve. So he will monitor that and if it worsens then we will look at options.

The pre med; will happen, so when she next has her Intragam, on November 10, I will have no bad night to report (touch wood)

and the kindy will get their management plan.

All is good.

The coughing up of blood; he feels that it is in the upper respiratory tract and we should watch her and wait. If it keeps happening I will take her to A&E.If she needs admission then he will test her lungs but for now, I will keep an eye on her at home.

This morning she is much the same, so all I can do is take his suggestion and observe.

On patience (patients) and time.

This waiting for the doctor to call back is getting to me.

Last week he was on call for two hospitals and was run off his feet.

Exhausted and unable to get back to us.

So it was this week that I was hoping to talk to him about the girl and what the deal is with her heart and her lungs.

This week that I wanted to tie him down to a commitment of pre medication for the next lot of IVIG because he won’t be here for that one, just like the last.

He is the specialist medical officer and he needs to order the meds.

Nobody else can or will.

He will be away for the first fortnight in November but it is during those weeks that Ivy and Noah have their pre school orientation and the kindy staff are already balking at Ivy’s situation and wanting medical plans from the paed. So, I was hoping that he would be able to help me out on those issues too…

and of course the girl is sick.

Her ear is discharging and she has a cough. She is pale and, you know, looks like she does just before she goes downhill and her heart rate is high  and I am watching and waiting and hoping that it will resolve itself, without frantic dashes to the emergency department. (work IVIG, work!)

There are a couple of things I wanted to run by him like why she has coughed up blood over the last two days and if this is something to do with the medications or something entirely different. 

 Maybe her ears, her nose, her throat?

Maybe her lungs?

Maybe I should just stop thinking.

He hasn’t called though, the paed.

The fear and frustration is slowly creeping in.

I am fighting it.

I am.

It’s hard though.

When I was just starting down the track with the Ivy girl’s issues, a doctor (maybe our paed, I can’t remember now) told me I was being over protective because I had had a neonatal death. Back then I was angry but maybe that doctor was onto something. Maybe I do get uptight because I have watched my baby die and I don’t want anything to happen to any of my others.

*sigh*

It’s Friday now.

So I am guessing this week for answers is a bust.

The box under the bed.

It’s been there since he died, the box under the bed.

With all of his things inside.

Things that mean something and nothing.

It comes out rarely now and I thought that I had moved past the material possessions, the physicality of his abscence;

The ultrasound pictures.

The small soft toys, an outfit, a crocheted blanket.

His birth certificate and one pronouncing his death.

The little booties and the hat he had worn all those years ago.

Papers and readings and words to sad songs in remembrance of a small boy.

A lock of hair, some fading ink impressions of not so tiny hands and feet.

Cards and letters, sympathy and empathy all stuffed into the box under the bed.

I can hardly bare to look but I can memorise it’s contents, know every piece by heart.

I know it is there, the reminder box that I once had a  firstborn son.

My second son discovered it today and pulled from it all of the past, marvelled at the small soft seal that, for a few days, belonged to his brother. Lay underneath the blanket and looked at all of the cards. Showed me the booties and tried to put on the beanie

and

my heart was torn.

My first instinct was to gather every last thing up, snatch them, almost, from his little hands.

Tell him, No!

Not those things, they are mine, they are my memory keepers, the last things that I have on this earth to bring me closer to William.

Even though I shove them under the bed amongst the dust bunnies and the piles of  read books and the shoes that are ten years old and haven’t found their way to the bin.

They are still mine to covet, to hoard, to cry over when I need to.

Then I stopped because

they are his too.

They are all that he will ever know of his brother.

These tangible things.

These posessions.

So I packed away the important things, the birth and death certificate, the important papers, the hand and foot prints, the lock of hair and then I let him look amongst his brother’s toys and he and his sister sat on the blanket and had a picnic with the seal and the hippo. All the while, the second son wore the beanie and kept the booties, one on each of his big toes.

The little sister and the little brother talked about all of the things that one might talk about when you are just about to turn three and you are picnicing in your parents’ bedroom,

except, for a moment when they talked, in the softest of  whispers, about the angel called William and how he closed his eyes and when he opened them again he was flying in the clouds

and for an instant I could see all of them playing together and felt closer to my first boy than I had in ages.

A piece of him

We were standing in the line at the material store.

Every kids favourite thing to do on the Sunday of a long weekend, don’t you know.

It is, isn’t it?

Surely,there is nothing more rewarding than trawling the rows upon rows of cottons and velvets?

Surely.

Each child has picked a coloured fabric so that I can make some superhero capes for our Christmas card shoot and the line is long with mostly women, of varying age.

The little ones are restless and the little boy, especially so. He is grumbling and carrying on in true male, ”I don’t want to be here shopping, for a start and in a place that has nary a Thomas the tank engine in sight” style.

His sister tells him if he continues to misbehave there will be no treat for him. (News to me, I had not planned on treating anybody with anything other than a cape and superhero goggles and a two hour photo session).

He leans in close to her and says…

…”You want a piece of me?”

The line women turn their heads sharply to lock their eyes on the person, this would be agitator and when they see he is a small, blonde, barrel of a child, they immediately shift their eyes to me.

I feel the blood rise in my cheeks and I look to the boy who has brought about my beetroot face.

Some women tut but most snigger and I ruffle his hair in good humour.

I am mortified until David leans over and whispers…

“At least he didn’t say, ‘your boobs are hawt‘”.