So, he called late on Friday evening

and we have a plan.

I like plans.

Most of which is watch and wait.

Her heart; more ecg testing.

Her lungs; the pulmonary hypertension, he feels, is due to the recurrent infection, the pneumonias and it will either get worse or it will resolve. So he will monitor that and if it worsens then we will look at options.

The pre med; will happen, so when she next has her Intragam, on November 10, I will have no bad night to report (touch wood)

and the kindy will get their management plan.

All is good.

The coughing up of blood; he feels that it is in the upper respiratory tract and we should watch her and wait. If it keeps happening I will take her to A&E.If she needs admission then he will test her lungs but for now, I will keep an eye on her at home.

This morning she is much the same, so all I can do is take his suggestion and observe.