We went to the hospital and Ivy had her IVIG. In the light of day and with a few phone calls they miraculously found that Ivy’s name was on the list for admission. We had “slipped through the cracks” because they assumed Ivy had been having the Intragam for a long time and we knew the routine. *sigh* 

Nope, second time, first time in day stay.

We had no idea.

Anyhow they ran it in a whole hour slower and tonight I am looking down the barrel of a bad night.

She already has the sweats.

I guess we will need to tweak a few more things before we get the mix right.

In better news…

David called the cardiologist’s rooms again and asked if there was a cancellation list. He told the receptionist that December was way too long for us to wait.

That we had lost our son to a cardiac abnormality and that I was finding the whole thing slightly stressful.

She agreed.

She said she would see what she could do and when she got back to David, she offered us this Friday at midday and it will be done by the cardiologist himself, not the sonographer.

I cannot tell you how grateful I am for David and for the kind receptionist who pulled some strings so that I would not have to suffer weeks of worry.

I love it when good things happen.

Today Ivy is supposed to go in for her second infusion of IVIG.

It’s day 31 and it’s already been put off once because Friday is not a good day for anyone, apparently.

Not alot gets done on a Friday.

Young doctors and nurses minds are filled with thoughts of the weekend,

apparently.

Monday was better for us anyway.

The thing is, the hospital, who acknowledged our admission two weeks ago, with a date and paperwork to sign, now has no recollection that we were to come in, no allocated time for Ivy.

Not in admissions and not on the ward. 

In the letter we received it stated that we would be contacted the day before with a time. Of course, that call never came so last night we started to worry.

David contacted the hospital and that is how we discovered that Ivy does not exist.

At least not on paper.

This morning I have woken early, in a dead set panic because  in the last 24 hours, Ivy has quite obviously been going down hill and she needs the Intragam.

The nurse on the ward, who told us that there was no paperwork for Ivy told us to come in early, at 8am, to sort things out. 

The paper work we have says to go to admissions, which doesn’t open for a full hour after we were told to be at the ward.

The last time we went to the ward without going to admissions first the nurses wouldn’t touch us. Would not even do a blood pressure for liability purposes.

When we spoke to the paediatrician last Wednesday, he said he had asked for her admission to be in school hours, so I could get the big kids off in the morning and be home for them in the afternoon.

An 8am start means leaving home at 7am and the school bus leaves at 8:30am

and

it’s the first day of term post school holidays.

David’s mum will come up to look after Noah but will have to leave her house at 5am to be here by 7am.

My head is spinning.

Having to go through the process of cannulation and the infusion is stressful enough without the mess of administration misshaps. Trying to explain to Ivy why she is being stuck again and then have to hold her little  body still while they set her up makes a  piece of me die each time, not to mention the worry of side effects and the like that rack her body afterwards.

I know I should just shut up and be grateful but dear Lord, you’d think this could just go smoothly, after everything.

I’m not sure what to do.

Do I go in and hope that it won’t take too long to sort it all out, do I wait for admissions to open and then approach them or do I wait and contact the paediatrician and see what he wants us to do?

Or do I just call the whole thing off  for today until we have things a little more concrete because at the moment, I think we could all use some stability.