Approved!
The power of the people is a wonderful thing, wouldn’t you say?
I am forever in the debt of one particular person, Veronica, who started this amazing, wonderful journey. One person who showed me that there were (lots) of people out there who cared about my girl and were willing to fight with us.
Oh, it’s just not coming out right because I am so excited!
Thank you to everyone,
really.
From the very bottom of my heart…
SHE GOT IT!!!!!!!!!!!!!!!
See you in hospital, we’re for admission tomorrow, at 10:30 am.
Tiff…….
I am SO HAPPY for you!!! We are in the states, and I remember how hard just making the decision to start three of my children on IVIG was……I cant imagine how hard it would be to make that decision, then be told NO.
Your daughter is so stunningly beautiful…..my heart aches that she’s been hurt so much, the same way it hurts for my own babies to have hurt. I can look at pics of my kids and KNOW, w/o checking the dates, which ones were before IVIG and which ones after. Their color is SO changed…..circles under the eyes are gone…….their eyes are brighter, clearer, there is pink to their cheeks, where once it was just the palest color possible. IVIG changed my childrens lives for the better, and I pray, pray, pray, it will change little Ivy’s life as well.
Congratulations! I’m very happy for you guys.
Thinking of you!
Yay yay yay!!! Best wishes for everything!
I just saw the news at Veronica’s site. I’m the father of four. One of my kids spent time in the NICU at birth, and then twice more in the last two years. It’s not the same, but I understand a bit.
So when I say I wish you all the best, it’s coming from someone that’s been there.
And she’s a cutee!
[...] one petition and over a thousand signatures later, she got permission to receive the treatment she [...]
Oh thank goodness! I’ll keep checking back for news. Hugs to you, Ivy, and everyone else in your family!
A friend told me about the petition. Congratulations!! I am so happy for Ivy and you and your family.
Amazing news. I have tears and chills!!
[...] UPDATE: Thanks to the power of the interwebs – Ivy’s medication was approved. [...]
That’s fantastic news!
Tiff, this is amazing isn’t it ???
Like Kelley, here’s to no more posts about hospital visits and unwell, unhappy Ivy and to more fantastic, fun posts about summer sun and stuff.
Hugs and prayers for Ivy’s surgery.
Excellent news! I need to catch up on all thats been happening in my internetless week. I am so happy that Ivy got the approval – I hope it makes a huge difference for her (and your family)
[...] Ivy will be going to hospital tomorrow to have her treatment. [...]
I have been reading you blog for a while now and I think that this is great news for your family, hope things get way better for your family.
Oh my gosh!! I am bursting with excitement and happiness for you!!!!
UNBELIEVABLE! UNBELIEVABLE!
WOOOOOOOOOOOOOOOOOOOOOOOOT!!!!!!!!
ACK, I’M SO RELIEVED! I’M SO THRILLED! I CAN’T STOP WITH THE CAPS LOCK KEY!
WOOOOO HOOOOOOOOOOOO!
CONGRATULATIONS!
YEEEE HAW!!!!
OMG how fantastic! Oh I am so pleased that Ivy is getting what she needs. Power of the (internet) people for sure! Incredible. Amazing. The way it should be.
I’ve been away from the computer since Friday night and wasn’t able to check in to see how you and Ivy were doing….I’ve been wondering. I had NO idea that the petition I signed for one sick little girl would have such a quick result! WOW WOW WOW
I am so happy I’m going to get off my chair and do a little jig around the office…I really am!
Best wishes for the surgery
May this be the answer for a healthy life for precious, gorgeous little Ivy
Jennette
Oh Tiff, I am SO SO SO thrilled and happy for you!! This is the best news I could have hoped for!!! You must be beyond excited!
[...] I was actually going to post an entry about a sick little girl named Ivy, and ask you to sign a petition that would hopefully help her get the treatment she needed. I’m so thrilled and happy to report that I don’t need to ask for your help anymore, because Ivy has been approved for her treatment! [...]
What wonderful news about Ivy girl. We wish her all the best from the bottom of our hearts. x
I don’t know you or Ivy, I’m just one of those hundreds of friends-of-friends-of-friends who signed the petition, but I’m delighted that she gets a shot at this treatment!
WoW!!!!!! I’m so happy!!!!!!!!!!!
I am so so pleased for Ivy and for you and your family, Tiff. I feel like celebrating. I was about to write a post about the petition when I read that the drug treatment had been approved and I was so delighted that I blogged about it anyway.
what fantastic news..
This is wonderful tiff… hope everything goes well the first round for your brave, beautiful little Ivy.
With friends like Veronica, how can you go wrong?
(((Hugs)))
Yay! Hoooray! This is wonderful and amazing! So very happy for you all.
So glad to hear this news!!!
[...] … For this lovely little girl. [...]
[...] lovely family from Three Ring Circus, just recently discovered what grand things a small step of faith and a little creativity can [...]
I’m so happy for your family!
(I read about you at 5 minutes)
I pray that everything goes so smoothly with the treatments, that Ivy’s body responds well, and that your whole family is filled with peace!
Reading your daughter’s story on her blog just broke my heart, I was so glad to see that she has been approved for the treatment. Your family will be in our thoughts and prayers.
[...] has received the treatment! Click here to read the post where her mother announced it. Thank you to all who posted about this and signed the petition! The internet can be used for good! [...]
You know I think this is fabulous!
I hope she is doing well with it.