Weekly Winners - wind dancers.

Okay, Weekly Winners lovers. It’s an Ivy and Noah fest today.
There are a couple of the older kids but Kim asked for photos of the wind dancers, so who am I to deny her?
Ivy got all dressed up in a couple of Pumpkin Patch outfits that we have bought for Summer (and she did have a […]

No deal

I am writing this from home.
Ivy girl is tucked up beside me after another blow.
Noah in the other bed and it is SO good to be home.
Approval; denied.
Our paed is going to Sydney on Monday to do battle with the drug board, David is writing a letter to our local member of Parliament and I […]

If you are a praying person and even if you are not…

The paed has just been.
Ivy is so much better and I thought we might have broken free from the hospital but he has spoken to the immunologist and it looks like we might be able to get the Intragam.
Tonight.
If approval comes through.
All I’m asking is for all of you to pray, cross your fingers, chant, […]

Thanking you

Thank-you to everyone for your comments and stories and emails. I appreciated them more than you will ever know. They lifted me up, made me laugh, made me smile. Some of them made me cry. It makes me feel that we are not alone. You are all wonderful.

Hospitals smell funny at 1am…

… and kind, beautiful nurses look trapped, when you cry over ward placement, at that time too.
The princess hardly moved for the whole admission process, waking briefly for cannulation and then again when they swabbed her ears.
It was only me, who remained in a sleepless, helpless land that is somewhere between salvation and hell.
So, here we are, […]

Weekly Winners - glittershoot.

Hi and welcome to Weekly Winners sponsored by the most Sarcastic of Moms, Lotus.
I had nothing for you this week my friends but I picked myself out of the gutter today and with the help of my beautiful husband and children we had ourselves a little photo shoot.
Hope you like the faves I picked out…
 
AJ.

Mal

Immy.

Maddy.

My […]

Ivy update.

The immunologost called back.
The reason for her long delay?
The IVIG?
Denied.
Even though she said Ivy would have no problems getting the Intragam it has been denied by the Australian Blood Bank.
An appeal is taking place as I type and the paed says it’s not over
but it is.
My little girl is going to have a life of […]

Normality…

 An ache, a pull, a constant battle;
to see the world with innocence and vigor.
New negativity.
A jaded, bitter, watchful me seeks out the sickly and squeezes between them, hoping to filter away any airborne disease.
Inwardly, I laugh at my naivity.
Feeling defiant and wrong for being out amongst the people, for socialising, when we are supposed to be […]

I hope I’ve taught them well.

* With kind permission from my mother*
My brother was a drug addict by the time he was thirteen.
It started with marajuana and escalated from there. His drug of choice was heroin but he was a poly drug binger and would take anything he could get his hands on.
Life was sometimes scary with a brother on […]

Does blogging have a lifespan?

I’m wondering.
Do you one day wake up and think I have nothing left to say that hasn’t been said?
What do you do, if that happens?
Do you walk away?
Do you wait until something fabulous or funny happens, so that there is anything other than real life to write about
because, really, I haven’t got anything.
You can only blog […]