Archive for August 2008
Weekly Winners – wind dancers.
Okay, Weekly Winners lovers. It’s an Ivy and Noah fest today.
There are a couple of the older kids but Kim asked for photos of the wind dancers, so who am I to deny her?
Ivy got all dressed up in a couple of Pumpkin Patch outfits that we have bought for Summer (and she did have a cardigan but it was discarded for full dance -ability), Noah was less fazed, choosing to play it grunge style.
If you want something less tiny human, go over to Lotus’ blog for some amazing photographers and entries.
I’m hitting you with my fave straight up.
Yes, it’s a black tutu. He loves it. He calls it his ‘dancer’.
What?? He lives in a house full of girls, what did you expect?
He finds wonder in everything.
I imagine smiling over the braces is difficult but she pulls it off nicely.
Being a big sister suits her.
He loves her and vice versa.
The paed calls her ‘princess’
Little tree hugger.
Dancing in the wind.
Enjoying the outside.
Little garden fairy.
No deal
I am writing this from home.
Ivy girl is tucked up beside me after another blow.
Noah in the other bed and it is SO good to be home.
Approval; denied.
Our paed is going to Sydney on Monday to do battle with the drug board, David is writing a letter to our local member of Parliament and I am licking my wounds from another round of hospital battle.
I was very upset when the news came but I have thought it through and if there were no IVIG available then we would just keep battling on, just as we have been, just as we did with Immy.
We have done it before and we can do it again.
Thank you everyone for thinking of us.
Tonight I am going to have a long shower, a hot cup of tea and a sleep in a non hospital regulation bed ie; a comfortable one.
Tomorrow, weather permitting, I am going to watch my beautiful, amazing, heroic baby girl dance in the wind and play with her brother, sisters and cousins outside in the sun.
Because tomorrow is a new day.
Thanking you
Thank-you to everyone for your comments and stories and emails. I appreciated them more than you will ever know. They lifted me up, made me laugh, made me smile. Some of them made me cry. It makes me feel that we are not alone. You are all wonderful.