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This is how it’s going to be…
July 31st, 2008 by Tiff

The immunologist called back.

The paed called back and we saw him today.

The bottom line is her vaccinations did not take properly. The Ivy girl is an antibody - less, low immunity time bomb.

So; she will get the IVIG.

After all this time I feel really weird knowing that I was right. It’s like a ball in the pit of my stomach and part of me wants to laugh out loud, get right up close and scream “I told you so! You arrogant people who think you know better than a child’s mother!”  and the rest of me wants to break down and cry and then cry some more.

For all of the struggle and for the times I’ve felt crazy and the constant sickness that Ivy has had to go through while they made up their minds.

The pain, the heartache, the worry.

I want to cry because it has changed my family.

It has changed me.

My confidence is truly shredded.

Before we can go ahead with the IVIG, Ivy will have the operation.

It has been decided that on Monday Ivy will go to the hospital for IV antibiotics. She has been unwell, her ear is disgusting and she has been dizzy to the point of falling over and claiming that her eyes hurt. The paed has decided we need to get this all sorted out before Thursday.

She will have the operation on Thursday

and she will have antibiotics and cortisone afterwards to support her through the trauma.

I know, grommets and adenoids is not a big deal surgically but for Ivy it is and it is for me too.

The truth is, I am scared.

Imogen had the same operation when she was four and went home on antibiotics. A month later her tonsil abscessed and burst, making her so septic that I thought I might lose her.

I have known this operation for Ivy was coming. I consented to it six weeks ago. I have thought about it, worried about it, tried to work through my fears.

It’s kept me up at night.

Really.

I have gone through everything.

Still, I have not come to any resolution.

It still feels wrong.

I am still worried that something will happen.

Pessimistic?

Maybe but it is an unshakable thing and usually when it is my issue, I can tease it out until I get to a place I feel…comfortable at least.

What am I supposed to make of that?

Do I push those feelings down and hope that I am just being an overprotective mother, with a negative outlook on life?

Or do I listen to my gut?

Because it’s not often wrong these days.

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25 Responses  
Alison (3xkewl) (98 comments.) writes:
July 31st, 2008 at 5:22 pm

How I wish I had an answer for you.
I can only imagine how you must be feeling.
Sending lots of healing thoughts - and wishing I could do more.
Hang in there.

Tracey (109 comments.) writes:
July 31st, 2008 at 6:15 pm

I don’t know what to say. I think she’ll be ok, I really do, but I don’t know her like you do, and I don’t have the same instincts. It’s so easy for me to sit back and tell you to go ahead, but I know what you fear. Of course you feel conflicted. Of course you feel doubtful. If you truly feel this is wrong, maybe it is. Follow your heart.

Kelley (32 comments.) writes:
July 31st, 2008 at 9:04 pm

Your gut is wrong this time. She will come through the surgery fine. Cause dammit that kid is AMAZING! Look what she has gone through and still as cute as a button.

And you. You woman are inspirational.

Love and smootches to ALL of you.

PlanningQueen (33 comments.) writes:
July 31st, 2008 at 9:59 pm

What an agonising decision for you to have to make. I have no answers but wish you strength and clarity to make the decision that you feel comfortable with.

lceel (234 comments.) writes:
July 31st, 2008 at 11:23 pm

She’ll be fine. Your gut is hearing echoes of the previous surgery, when things did not go properly, and you were scared to within an inch of your life. Hang in there, toots. Just hang in there.

Vanessa writes:
August 1st, 2008 at 12:44 am

I don’t know what to say. I can’t even imagine how difficult it must be for you to have to make such difficult decisions. What I do know is that you have a pretty good track record. If I was you I’d be damn proud of myself!
Love, hugs and wishes.

HennHouse (Karin) (75 comments.) writes:
August 1st, 2008 at 12:59 am

“Pessimistic?” or Intuitive?

“Always be gentle with others. The Lord will soon be here. Don’t worry about anything, but pray about everything. With thankful hearts offer up your prayers and requests to God. Then, because you belong to Christ Jesus, God will bless you with peace that no one can completely understand. And this peace will control the way you think and feel.” Philippians 4:5-7

Amber Schmidt (32 comments.) writes:
August 1st, 2008 at 1:07 am

my heart just hurts for you and for Ivy. I wish there was some magic wand that we could wave even just for one day… that would make it all go away. Always remember that you are not doing this TO her… you are doing it FOR HER!! There is a difference.

You are an amazing person and wonderful mother and my only words of wisdom are those that I give to any new parent I talk to… You have the God given right to protect your child no matter what!!!! You have the ability to do whatever you need to do… HOW? I don’t know. But you will do it. When you need it the strength will appear.

Huge hugs girl!
Amber Schmidt
http://family.kentuckystudio.com

Sueblimely (25 comments.) writes:
August 1st, 2008 at 5:15 am

My son having the grommet operation was a worry for me because he too had low immunity and allergy/intolerance problems that made me worry about the anaesthetic. I was told he would be still out to it for a while when he got back to his room but, although a little groggy, he was awake and within 5 minutes wanting to toddle around the room. He had no problems at all and no more of the constant ear infections he had been plagued with.

Jientje (80 comments.) writes:
August 1st, 2008 at 5:33 am

Yes, hang in there Tiff, sending you a big hug, and lots and lots of good vibes to bring this to a happy ending.

I have an award on my blog for you, will you come and get it please?

Krista (17 comments.) writes:
August 1st, 2008 at 6:11 am

If you really think there is something wrong then you have every right to put this off. Make sure you know exactly what’s going on (like you don’t ;) and if anything seems off then you know what to do!
I guess it comes down to, will this be a good thing or do the risks outweigh the benefits. Trust your instincts. They haven’t let you down yet!

Good luck! And let us know how the dance thing went!

Marylin (168 comments.) writes:
August 1st, 2008 at 6:32 am

Oh goodness me - what a time of it poor wee Ivy’s having, not to mention how amazing her mummy is with it all!

((hugs)) hon, I hope all goes well for you. Not been around as much, but you and yours have been in my thoughts lots.

Lots of love xxx

Jenty (20 comments.) writes:
August 1st, 2008 at 6:46 am

(((HUGS))) You’ll all be in my thoughts and prayers next week.
Glad they finally got back to you!

jeanie (105 comments.) writes:
August 1st, 2008 at 7:03 am

I don’t know what to say except offer you all the cyber hugs I can. I just wish wish wish that the docs will actually start to take you on board and LISTEN to your concerns instead of stumble over them by accident down the road…

Aunty Manou(new comment) writes:
August 1st, 2008 at 9:37 am

Tiff, you are beyond reproach, I have never know anyone to go through what you and your wonderful mum have gone through in life, I don’t know why some people are so challenged in life whilst other just glide through not even realizing how lucky they are. you are a wonderful person which makes you and even more wonderful mother. As all have said hang in there. I am so glad that I have finally been able to read all this. Love to all of you. I hope the op went well. Aunty M

Mum writes:
August 1st, 2008 at 2:09 pm

Oh sweetheart, I know the turmoil you’re going through. Yes, lessons are learnt from past experiences & instincts shouldn’t be ignored but unfortunately no-one (including the best medical minds) can foresee the future or predict definate outcomes, especially in Ivy’s case. I guess the question is how much longer the agony of all this for both Ivy & you & the family can be prolonged. Maybe just a postponement until the IVIG kicks in, is a possible solution to allay your fears and result in a better outcome. Who can know & herein lies the dilemma, I’m afraid.The decision can only be yours & David’s in the end. Whichever way you go, with or against your instincts, I know that you will make the right decision for Ivy. You will! So have confidence in yourself & whatever decision you make because it will be the right one. Love, Mum xoxoxo

river writes:
August 1st, 2008 at 4:39 pm

I’d suggest having a chat with all who will be concerned with Ivy before, during and after the operation. MAKE SURE THEY’RE LISTENING. Tell them what happened with Immy years ago, how it scared you then, how it’s scaring you now. Then take a deep breath and relax. Ivy will be fine. She’s tough. And she has all of us praying for her.

me & boo (29 comments.) writes:
August 1st, 2008 at 5:47 pm

Oh Tiff I really feel for you. What an awful decision for you to make especially when motherly instincts kick in. All the what ifs… and you’re making a decision for Ivy. I am hoping and wishing the operation is successful, and Ivy gets the IVIG and everyone lives happily (and healthily) ever after.

As your mum said, only you and David can make the decision, and the decision you make will be the right one.

((HUGS))

Veronica (420 comments.) writes:
August 1st, 2008 at 7:26 pm

I don’t know what to say, probably to follow your gut. But that is me and I am full of pessimism here lately.

maggie, dammit (3 comments.) writes:
August 1st, 2008 at 11:21 pm

Trusting your gut is the number one rule for parenting, as far as I’m concerned. It’s not always easy, especially in the face of know-it-all docs. Yes, they are the experts in their fields, but YOU are the expert when it comes to your children. Good luck with this, I can’t imagine how it feels. :(

Jayne (141 comments.) writes:
August 2nd, 2008 at 12:01 pm

Ivy will be fine, she will sail through the op.

Lilprecious75 writes:
August 2nd, 2008 at 10:46 pm

I can only imagine your fear. You and David must make the decision that you feel is right for you and your family. My thought and prayers will be with you as you go through this process. You are TRULY amazing - don’t EVER forget that!

Xbox4NappyRash (272 comments.) writes:
August 4th, 2008 at 1:46 am

Just, good luck Tiff.

Widdle Shamrock (101 comments.) writes:
August 4th, 2008 at 11:54 am

I wish I had the answers for you.

Share this with your docs. Even if only to reassure yourself.

Childlife (195 comments.) writes:
August 5th, 2008 at 3:42 pm

Tiff, you have been right about Ivy every single time. Not once so far have you been wrong. You are THE expert when it comes to Ivy and don’t let anyone with a white coat and a diploma bully you into doing something that you feel is the wrong decision. Go and get the ear infection sorted out, then go with your gut. It might be that once you are there, your thoughts on the subject will change, but don’t go along with anything that gives you that pit-of-your-stomach-this-feels-horribly-wrong feeling. You know Ivy better than anyone — I’ll be keeping you in my prayers that you will know what to do when the time comes.

Hugs!

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