You know what makes me crazy?
Aside from driving for two and a bit hours like a mad woman to the hospital, so we can sit and wait for an hour and a bit for our half hour slot?
It’s a doctor who doesn’t know what we have been through and who looks the pred child up and down and utters the most hated of statements to any parent of a chronically ill child…
“Well, she looks good to me”.
AAAARRRRRGGGGGHHHHH!!!!!!!
Of course she looks well, I just spent the last week pumping her full of anything that remotely indicated it might stave off the nasty bugs so we could make our way down to see you.
I worked hard, darn it, to get her here.
That’s why I don’t look so hot!
Why do doctors do that?
Why do they make throw away statements like that?
Especially when they must know we wouldn’t be there if everything were hunky dory.
Is it supposed to lift us up?
Because it doesn’t.
Okay, ranty rant over.
We think the Ivy - girl is going to get her IVIG!
We just have to wait for some bloods to come back and the immunologist has to go to the board and present Ivy’s case but Ivy is a good candidate and by Friday we should know for sure.
From what we understand, all that is just a formality. The doctor will be pushing for her to have the IVIG, starting as soon as possible.
So there you go.
There is more information and some negatives but I’m just going to give you the good tonight
because I’m feeling positive and it’s been almost five weeks since our last admission and..and..and
YIPPEE!!!!!!
Okay?
