Ivy update, I’ve never wanted something more… I think.
Today we went to the paediatrician.
Ivy has lost just over a kilo.
Her cortisol levels are out of wack.
Her iron stores are low.
Her chest x - ray looks better, the pneumonia is clearing.
Her kidney functions are still okay.
Her left ear is discharging, her other is infected.
Her white cell count still high.
She is still sick.
But
it’s time to move forward.
We are going back to the immunologist on the 22nd of July.
After that we are hopefully going to start IVIG or Intragam as it is commonly known.
Before she has her operation on the 7th of August.
What is IVIG?
It is a blood product, a plasma that is rich with antibodies. Ivy will have this infused into her body every four weeks. It will help to boost her own immune system and with any luck she will be able to have something of a normal life.
Sure, there are risks.
There are with any blood product
but
She might be able to go to pre school next year, without fear of catching every nasty bug under the sun.
She might be able to go to play group, go to a play centre, a shopping centre, a doctor’s office, visit friends and not walk out with some disease that might not have made the carrier sick but most certainly would Ivy.
It might mean less of the hospital and more of the sunshine.
I’ve never wanted anything other than to see her healthy.
I’ve never wanted anything more than this.
This is our chance, I think.
This is her chance.
Oh Sweet Momma, I want this for her too, for you and for all of you. My fingers are crossed that she feels better ASAP.
Poor lamby.
I hope that your wishes come true after she has this. And the 22nd isn’t that far off - not long to go to hopefully have something really good happen.
I will be thinking of you on the 22nd.
Yay for getting better.
Hope the new treatment does everything you hope for.
Oh I hope it works for your precious girl!
Praying for you and your precious baby. What hope there is in healing and chances…
Keeping everything crossed that this works for lil Ivy-girl. She deserves nothing more than to be better, and that goes for you too! ((hugs))
That picture is precious.
The very, very best of luck to you.
Oh, I so want sunshine and smiles for this little girl! Lots of prayers for you and Ivy, Tiff — that this will be one of the answers that you’ve been waiting and fighting for.
Hugs!
Know that I am praying and thinking of Ivy every day. EVERY DAY.
I find myself thinking of you and your daughter and other kidlets often. I hope this treatment works for Ivy, and that she suffers no ill effects from it.
Wishing and hoping for the good health and happiness that you are all searching for.
I think the paed must have read the post where you thanked him. It’s the only explanation.
My thought are with you and your girl. I have everything crossed for a wonderful outcome!
I am keeping everything (EVERYTHING) crossed for her.
My DH makes that stuff… well ok he used to make that particular stuff now he works in a different part of the plant and makes other plasma related products but he still has a bit to do with IVIG so I will make sure that he makes extra special extra good batches in the coming weeks so that your little princess can finally get the break that you all so badly deserve!
Hoping everything goes well and Ivy can start IVIG soon.
I have all my extremities, and those of anyone else I can find, crossed for Ivy - for all of you, actually.
I so hope it works, and life improves for our Ivy
Hoping, hoping, hoping…. I REALLY want this to work for her. A chance at pre-school and all the rest, what wonderful things to look forward to.
Prayers and best wishes for Ivy and strength for you. I hope you get what you wish for good health for Ivy.
I think about you so often. I really pray that she gets better soon
hope the new medications and IVIG bring a resolution to Ivy’s constant infections and bring more sunshine into your lives. Hugs and prayers for 22nd July.
I used to work in a unit where I administered Intragram, and have seen some excellent results. I hope this works for Ivy…
Glad to hear the pneumonia is clearing.
Thinking of you.
Positive thoughts and a thousand million billion prayers!
Hoping this works for her - sending you lots of hugs and prayers in the meantime!
I hope everything works out…I’ll be thinking of Ivy on the 7th.
My heart just aches for you and Ivy. Please just know that there is another family on the other side of the world who are also wishing for the same thing and HOPING that some day soon our girls will be able to move past these bad days and never think of them again. As moms we can bear those scars as long as our kids don’t have to.
You are a strong mama. Hugs to you and hope that this IVIG makes a drastic improvement in Ivy girl!
Amber Schmidt