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The walls of the room are pink.
June 8th, 2008 by Tiff

The lounge that is also my bed is bottle green. Oh bottle green, the colour of torture. It sits to the right of her bed and grins at me, with large gaping mouth, the monster, who will steal what is left of my sleep.

The floors are a beige linolium, just perfect for catching various bodily fluids from small, unhappy children and boy, there seems to be alot of those about this place.

We are inside our little room though. The  room that keeps the everyday germs of the hospital environment out. The room I have come to  (lovingly) know as the ‘room of hell’.

This room is small but it holds in it alot of emotions.

Worry, fear, hope, exhaustion, happiness. Sometimes it seems so full that I think it may combust and the sea of tears past, that are quietly spent in the corner of the room, as the parents watch and wait for their babies to be well, may flood the corridors of the ward and send cots and highchairs floating away, along with drips and oxygen masks and such.

This room harbors sick children, sometimes contagious, so as to keep the germs in but mostly the compromised.

The world outside this tiny room is busy.

The nurses bustle up and down the hall, tending to the needs of the sick and their parents, doctors and social workers and other staff have quietened conversations about room such and such, fully believing that they cannot be heard, children cry and call out, to parents, who have gone for a break, for parents who are absent…

Machines beep and whir and whisper secrets to the walls, of antibiotics, pain relief, oxygen supply and fluid needs.

Cleaners come and go, buffing and polishing, people with food trays, orderlies who sweep in and transport patients for xrays.

The world outside is constantly moving.

The door to the outside (incedently, also bottle green) stays closed but there is a small glass window, just inviting enough that it calls you to cast your eyes, sometimes just to look, sometimes on a wish that someone may come to relieve the monotony of the four pink walls.

I often wonder if we are some experimental family and the room is a cage, where observers can look inside to see and research.

The doctor comes, but once a day and he is swift and kind. Gentle with the child who is lying still in the oversized bed, that makes her body look more tiny and frail than it should.

The crisp white sheets crunch as his hands move over every body part, checking for everything and nothing.

The only diagnosis that is clear is that we will need more time in the room.

He leaves and I am both angry and sad, also; relieved.

He has no idea that he is our lifeline, our ticket to freedom. I would never say how much the sick child’s parents need their doctor, how important he is in this quest to make her better. It would seem too…needy, somehow. Instead I look to the door and plan our escape.

The family joins us briefly and it is wonderful and overwhelming all at once, this tiny room, now full to overflowing with humanity. The air heats up with each breath that is pulled and pushed from nine sets of lungs but it is a welcome  change from the sterility of the room.

Nurses come and go, their lives in fast forward for eight hours of their shift. I feel as though we are unmoving as they whiz around us; the girl in the bed and the sentinel mother. Silent, watching.

She is pale and her eyes tell a story. A slow acceptance of her reality.They do not dance today, in toddler merriment. They look blankly at the pink walls. Unseeing, or maybe, she has found an escape and is in a magical land of all the things she loves, far away from the blandness that is the room. Who knows, she is uncommunicative, lost in her own world. I am her occasional cuddle, when she needs another human.

My head hurts from little food and even less water. The flourescent lighting drills into my brain, bleeding it of any last intelligence. I look around to the green things; a chair, a door and a sick bowl. None of them trees. none of them living, breathing, life maintaining things.

I want to go outside and feel the Winter chill on my face. I want to take her and run, push her on a swing, so high, that she can see into tomorrow and know that there is one and that it is far better than anything that I can offer her today. I want to give her that hope. I want it for me too.

Instead I look to the walls, in their suffocating shade of mushroom pink and wonder if tomorrow will be the day that she will come good and we can leave this place, so needed and yet so unwanted, behind us.

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21 Responses  
Xbox4NappyRash (314 comments.) writes:
June 8th, 2008 at 8:49 pm

I’m torn between the sadness of it and the beauty with which it’s told.

Please stay positive, there’ll be plenty toddler merriment to come, I’m sure of it.

Tracey (109 comments.) writes:
June 8th, 2008 at 9:02 pm

Oh, quit your bitching! You don’t have to cook, clean or make the bed! Get over yourself!!!

Hang in there, only another 24 hours or so to go….

Lilprecious writes:
June 8th, 2008 at 9:32 pm

I feel very helpless, and leaving a comment doesn’t seem like much… but… I just wish I could give you a big hug! I wish I could wave a magic wand and make everything better! I wish I could just make all the bad stuff melt away for you.

Trish (304 comments.) writes:
June 8th, 2008 at 9:36 pm

Beautiful though bittersweet I hope MIss Ivy is taking it all in her stride well if she isn’t too bed bound. I agree with Xbox - I hope the toddler merriment will return tenfold in a few days and you find an upside like Tracey said !

Veronica (477 comments.) writes:
June 8th, 2008 at 10:14 pm

You write it so well and it breaks my heart.

And seriously, bottle green and pink? Ewwww!

lceel (297 comments.) writes:
June 8th, 2008 at 10:53 pm

You know I love you. You know I care. What you don’t know is what torture it is to be so far away, so unable to help, so unable to affect the situation. So I pray. Know that I pray.

Kelley (152 comments.) writes:
June 8th, 2008 at 11:35 pm

My God.

I was there with you babe. My God. I was there, I could see it.

That post was haunting.

Sending you huge hugs my lovely, a corner will be turned very soon. I can feel it.

Jenty (55 comments.) writes:
June 9th, 2008 at 12:15 am

(((HUGE HUGS)))
I really hope that Ivy gets better quickly and you can get out of there.

Sadie (91 comments.) writes:
June 9th, 2008 at 2:59 am

You brought tears to my eyes with this post. It was written so beautifully, and with such heart-wrenching honesty…Bless you all. I pray for her recovery…and for your heart and strength. You’re in my thoughts every day.

Marylin (184 comments.) writes:
June 9th, 2008 at 4:42 am

Sending you lots and lots of love over the seas to you and your lil Ivy-girl in you pink and green room. xxx

jeanie (128 comments.) writes:
June 9th, 2008 at 8:17 am

Very beautifully written - I wish it was totally fiction.

Don’t start licking the walls…

Rach (63 comments.) writes:
June 9th, 2008 at 8:36 am

So beautifully written - so sad and lonely… Hang in there x

Vanessa writes:
June 9th, 2008 at 10:41 am

You write so beautifully. You are in my thoughts and I wish every day that things get better for you and Ivy.

Jayne (143 comments.) writes:
June 9th, 2008 at 11:51 am

((hugs)) and puppies on a summer’s day thoughts to you and Ivy.
Slap on a smile and start laughing, make Ivy laugh, tickle her and tell her silly stories, paint your face with silly colours, laugh, and laugh and laugh even if you feel like throwing up and smashing everything around you.
Laughter releases endorphins and the Ivy girl can do with every little endorphin she’s got bottled up, waiting to burst forth around her system.
Have a look here
http://www.holisticonline.com/Humor_Therapy/humor_therapy_benefits.htm
Fingers crossed you’re both home soon ((Hugs)).

Suze (13 comments.) writes:
June 9th, 2008 at 2:15 pm

I wish I was there, I really do. If only to give you a hug and a break to walk outside and feel that winter air.

I truly jope you are both home soon, and Ivy picks up quickly. I also hope her mother picks up - she needs TLC too.

xxxxxx

river writes:
June 9th, 2008 at 2:33 pm

I feel so helpless here. I’m another who wishes I lived nearby so I could give hugs and help. Can you read Ivy’s favourite stories to her? Maybe play some of her favourite songs on an mp3 or something similar? Any other things that will help keep her connected to home and family? whatever brings a smile to her face, however briefly, will help YOU immensely, and you feeling a bit better will be good for Ivy. Hang in there. All of us wish nothing but the best for you all.

Alison (3xkewl) (134 comments.) writes:
June 9th, 2008 at 5:55 pm

I swear, after reading your post, I can smell the hospital.
Sending lots of healing thoughts hugs to you and your baby. I hope you’re both back home, where you belong, soon.

Betsy (89 comments.) writes:
June 9th, 2008 at 7:36 pm

Love, much love.

Health, much health.

Strength, much strength.

Peace, much peace.

Mum writes:
June 10th, 2008 at 3:09 pm

I so wanted to come to visit to help break up the boredom & give you a break but knew Dave & kids were going to be there Sun. night & yesterday when I phoned home, I understood from Immy you & Ivy would be home early afternoon. So sorry I wasn’t there for you, hope you can forgive me. So happy to hear the nurses were so caring & Ivy recovered well enough to be able to go home. I hope while you were there you felt some relief from the worry & stress & were able to catch up a little on some much needed sleep. Love always, Mum xoxo

Childlife (203 comments.) writes:
June 11th, 2008 at 11:39 am

Oh, Tiff! You do know how to wring tears from my soul — I can see the room, taste it, smell it. And I am so very desperately sorry that you and your little angel are there once again. Your heart brings beauty to everything you touch, Tiff… even bottle green bed-frames and mushroom pink walls. I feel so very privileged to be allowed to treasure these priceless glimpses of lovely, lovely you.

Amber Schmidt (44 comments.) writes:
June 14th, 2008 at 12:07 pm

I have searched for your email and hope that you will see this comment. My daughter was diagnosed TODAY with Pemphigus. Among 37 other diagnosis my almost two year old, Kyleigh, has endured 8 surgeries, 2 open hearts and spent nearly 6 months of days in 3 children’s hospitals. On my search for an answer to her “blistered” bottom I found your documentation of Ivy’s bum. I was able to print it out and take it to our Ped and she agreed. We are currently seeking and “official” diagnosis but our Ped said that we are not far off here. We have already started treatment because she felt we could not wait. I will never be able to thank you enough for the gift that you have given us!!! Because of you my daughter has already been started on steroids and they are now looking into the fact that her extended use of ampicillian and Captopril to save her heart, may have had long term effects.

I am reading your journaling of the recent hospital stay and my heart just aches for you. There are so many things that you describe and I can just close my eyes and I am there all over again. I am back to that place that has become like home for us. I remember those things and many nights I close my eyes and I am back there no matter how badly I want NOT to be.

So… from an ever grateful friend in Kentucky… THANK YOU!!!

Amber Schmidt
http://family.kentuckystudio.com
schmidt.amber@kentuckystudio.com

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