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Archive for June 2008

Positives.

Hi,

To anyone out there, who hasn’t run away (and I know alot of you have) thanks for sticking by us, thanks for reading still and taking the time to comment, even though you don’t know what to say. I know it’s all down in the dumps, illness rants and raves and you’re all sick of hearing it.

Just thank you, ok? 

Hospital: day five,

* The nurses on the paediatric medical ward are so amazing. They are kind, beautiful women, who look after my girl with skill and grace. Today we have Ivy’s favourite nurse, Pippa.

* I had a good ‘chat’ with the paediatrician and although we are still going ahead with the operation, I feel as though things will be put in place to prevent infection as much as possible. Also, it won’t be until after we get over this hurdle.

* Ivy’s oxygen saturations are up to 94%,

* She has colour in her cheeks

* We are allowed to go home today, so we can wake up with Lily on her birthday

* That means my own bed

* and my own shower

* and something to eat besides cheese Twisties (not that I have anything against them, they are a choice stress food, it’s just that there is not much vegetable in the humble Twistie and I am so desperate for vegetable, I am craving cabbage (yes, I know that’s sad)).

*It means fresh air and wide open spaces.

* I can kiss the kids and hug them tight.

* I can wander around in my zebra patterned flannelette PJs and not feel self conscious. (What? I got them for Mother’s Day, besides I look hawt in zebra wear… not).

Just a quick shout out to Tracey, Trish, Mary and XBox who kept me sane through MSN, texts and email, to Mum and David’s Mum and to the Wonder husband for holding down the fort and to the cherubs for being so patient.

I love ya’s all. MWAH!

Hospital day 4.

pneumoniagirl.jpg

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Just stuff and nonsense.

Today we were told (quite by accident) that the doctor does not want us to leave until Thursday. It would have been nice to hear that from the paediatrician or even the staff specialist.

But No.

Thursday is Lily’s 10th birthday.

And I’ll be in here.

I think I have just been made to do something I don’t want to do. I think I just consented to more surgery for my daughter.

Backed into a corner by circumstance and a small single room and two heavy weight doctors.

The ENT doctor’s reasoning?

Then the paediatrician will stop ringing him…

and I will stop ringing the paediatrician.

Because Ivy is such a pest.

I feel like a trapped animal.

No one can understand why I don’t want to have Ivy operated on. Not just the doctors but family and friends too. They all think it is so cut and dried.

They all think I’m nuts.

Even though I told them about Imogen’s adenoidectomy and how a month later she was in hospital very septic with a tonsil abscess and how it took us almost a month to get her well enough to be discharged.

You know, Ivy is NOT Immy.

Except she IS.

Every problem we have had with Ivy, we have had with Imogen.

The Ectodermal Dysplasia.

The immune deficiency.

The ear infections, the upper respiratory tract infections, the pneumonias.

I told them about my experience with Imogen and they laughed at me and said that Ivy was not Immy.

So now, even though Ivy is immune deficient and she is immune suppressed she is going to have an operation to remove her adenoids and they are going to put more grommets in.

The feelings I have right now are too many to get a good handle on, so I’m venting on my blog, trying to get perspective.

I give up.

I just want to take us home.

Irony.

Irony is;

when you discover that your daughter has mycoplasma pneumonia and the hospital doctor tells you the best oral antibiotic to treat it is the very same long term antibiotic (Erythromycin) that your paediatrician only ceased a fortnight ago, in favour of Keflex.

 Bwahahahahahahahahahahahahahaaaaaaa!!!!!!!!!

So, here we sit on three different IV antibiotics, waiting for her lungs to come good.

I love Winter.

Love it!