Just stuff and nonsense.
Today we were told (quite by accident) that the doctor does not want us to leave until Thursday. It would have been nice to hear that from the paediatrician or even the staff specialist.
But No.
Thursday is Lily’s 10th birthday.
And I’ll be in here.
I think I have just been made to do something I don’t want to do. I think I just consented to more surgery for my daughter.
Backed into a corner by circumstance and a small single room and two heavy weight doctors.
The ENT doctor’s reasoning?
Then the paediatrician will stop ringing him…
and I will stop ringing the paediatrician.
Because Ivy is such a pest.
I feel like a trapped animal.
No one can understand why I don’t want to have Ivy operated on. Not just the doctors but family and friends too. They all think it is so cut and dried.
They all think I’m nuts.
Even though I told them about Imogen’s adenoidectomy and how a month later she was in hospital very septic with a tonsil abscess and how it took us almost a month to get her well enough to be discharged.
You know, Ivy is NOT Immy.
Except she IS.
Every problem we have had with Ivy, we have had with Imogen.
The Ectodermal Dysplasia.
The immune deficiency.
The ear infections, the upper respiratory tract infections, the pneumonias.
I told them about my experience with Imogen and they laughed at me and said that Ivy was not Immy.
So now, even though Ivy is immune deficient and she is immune suppressed she is going to have an operation to remove her adenoids and they are going to put more grommets in.
The feelings I have right now are too many to get a good handle on, so I’m venting on my blog, trying to get perspective.
I give up.
I just want to take us home.
How dare they laugh!
Has anyone taken the time to sit with you and discuss your fears/feelings?
Forget that….stupid question.
Vent as much as you need to. I’m listening.
Love and hugs.
I can’t believe they laughed at you… that’s so bloody… ARGH! Can I come kick their butts? Condescending pricks…
ahem, sorry, vent away! ((hugs))
What happened to the plan?
I can understand you wanting to run home with her, get her out of that place.
Try and stay positive eh? as much as you can.
All my best.
Oh hon, I know how much you didn’t want her to have surgery. Crossing fingers down here for a speedy, uneventful recovery.
I can understand how you feel about not wanting her to have surgery - my son wasnt septic but he did hemorrhage for 8 hours after having his adenoids out. After the nurses tried everything to stop it, the ENT came and looked at him and decided he needed to go straight back to surgery - at 8pm. They re-cauterised where his adenoids had been and he was fine - but I wasn’t. I was a mess.
HOW DARE any doctor laugh at any mother???? We are the ones that know our kids best. If you don’t want her operated on then don’t sign the consent. Has she had a video done to determine whether she needs her adenoids out???? My daughter had one and it was very freaky to watch - but without that they may have unnecessarily taken her adenoids out.
I am thinking of you and sending you lots of strength. All I can say is trust your instincts, if it doesn’t feel right then don’t do it. She is not a statistic that it won’t happen to, she is your daughter and you know her best.
If you need an excellent ENT in Sydney then let me know - he operates at the Kids hospital (Westmead) too
((((hugs)))))
(((HUGS))) I would have the same misgivings as you.
I am relativly new to your blog and I don’t read every day so I am not up to speed yet but how dare they laugh at you? Where do you live? I am from Jersey and I swear, if a doc ever laughed at a mom that I know, that doc would need a doc himself. Ha! Seriously, I am praying for your daughter and your family and hope tht her surgery goes off without a hitch.
What’s Ivy’s Absolute Neutrophil Count? What antibiotic is she on? She’s still on steroids right?
I can see why you don’t want the surgery. It’s scary to think we are living a past you hated livign the first time and by God if you can help you’re not going to live the second time.
I think you need a second opinion. Is that possible?
Awww, Sweetheart. I wish I could help. I truly do.
(((hugs)))
If you’re not happy, get a second opinion and don’t let anyone force you to sign the consent form.
I LOVE YOU.
YOU are a supreme being and mother.
I am thinking of you all and saying prayers too.
They LAUGHED !!!!!
That is freakin’ appalling !!!!
((hugs))