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Archive for June 23, 2008

Just stuff and nonsense.

Today we were told (quite by accident) that the doctor does not want us to leave until Thursday. It would have been nice to hear that from the paediatrician or even the staff specialist.

But No.

Thursday is Lily’s 10th birthday.

And I’ll be in here.

I think I have just been made to do something I don’t want to do. I think I just consented to more surgery for my daughter.

Backed into a corner by circumstance and a small single room and two heavy weight doctors.

The ENT doctor’s reasoning?

Then the paediatrician will stop ringing him…

and I will stop ringing the paediatrician.

Because Ivy is such a pest.

I feel like a trapped animal.

No one can understand why I don’t want to have Ivy operated on. Not just the doctors but family and friends too. They all think it is so cut and dried.

They all think I’m nuts.

Even though I told them about Imogen’s adenoidectomy and how a month later she was in hospital very septic with a tonsil abscess and how it took us almost a month to get her well enough to be discharged.

You know, Ivy is NOT Immy.

Except she IS.

Every problem we have had with Ivy, we have had with Imogen.

The Ectodermal Dysplasia.

The immune deficiency.

The ear infections, the upper respiratory tract infections, the pneumonias.

I told them about my experience with Imogen and they laughed at me and said that Ivy was not Immy.

So now, even though Ivy is immune deficient and she is immune suppressed she is going to have an operation to remove her adenoids and they are going to put more grommets in.

The feelings I have right now are too many to get a good handle on, so I’m venting on my blog, trying to get perspective.

I give up.

I just want to take us home.