Dentist week and William’s notes.

I wish I could name names sometimes because yesterday I took Ivy and Noah to the dentist.

Not just any dentist but the best dentist in the world.

She was lovely. thorough and has brought us one giant step closer to havivg a type of Ectodermal Dysplasia for Ivy and Imogen.

I’m not really sure what having a ‘type’ will mean, aside from the fact that I have been able to access all kinds of journal publications about Rapp - Hodgkins and have a better understanding of the ED process. I am very thankful that they have a mild case and I am also thankful that their teeth can be looked after by our new paediatric dentist.

The practice also has three dental nurses, all were lovely and they were not phased by twin toddler tornadoes.

At all.

At one stage Noah mosied over to a nurse who was looking at xrays of a jaw. He looked at her and then pulled himself onto her lap. She hugged him close and then explained the picture that was before them. It was totally sweet and so unlike anything I have experienced in professional rooms before.

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Today I am going to read William’s notes again.

It will be the last time.

I have been trying to access them for over six months.

Am I nervous?

Yes.

I want to take everything in, commit it to my memory for one last time.

I don’t want to forget the little things.

There is already so much of his birth that I can’t remember.

A whole significant portion of his birth that I have lost,

that I can’t piece together, no matter how hard I try.

For whatever reason, my brain cannot process it and so I have to read the notes to help.

I promised the obstetrician this would be the last time.

I am hoping for the sudden onset of a photographic memory…

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Comments

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Xbox4NappyRash (113 comments.) (subscribed) said May 23, 2008, 7:55 am:

So so sweet about the dental nurses.

Good luck with William’s notes, I hope you get what you want from them
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Veronica (230 comments.) said May 23, 2008, 9:09 am:

Your dental nurses sound gorgeous.

Good luck today.
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Sarah said May 23, 2008, 10:31 am:

So glad you have a good paed dentist, they are great! But DA’s are even better The ones you had yesterday sound wonderful.

Thinking of you today, and I hope that you find something that helps you.
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Jayne (128 comments.) said May 23, 2008, 10:43 am:

Congrats on finding such a great dentist!
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Trish (158 comments.) said May 23, 2008, 10:45 am:

I am so happy to hear you had a great visit to the dentist.Also, that you found the information on Rapp - Hodgkins and have been able to access information to increase your understanding.

I hope reading William’s notes again helps you find the missing gaps.Thinking of you.
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Mum (subscribed) said May 23, 2008, 11:29 am:

Ask if it is possible to get a copy of all the relevant stuff you need to keep those memories, if it is going to help. After all, they are YOURS & WILLIAM’S notes and you have a right to ask for them. Take as much time as you need and read as many times as you need so that photographic memory kicks in. Love you. xoxoxo
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Krista (10 comments.) said May 23, 2008, 2:56 pm:

Can’t find an email for you so here’s my “reply” to your comment!

I heard about Glow in the Woods, but didn’t go there. I had troubles enough when she switched over her site. Glad to know you’ve found her.

BTW, where are you in Australia? I’ve had a penpal from Melbourne since 1987! She came to visit me 2 years ago and someday I hope to visit her!
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Marylin (109 comments.) said May 23, 2008, 7:32 pm:

Can I have your dentist’s nurses? Over here they just want you in and out asap :S

Good luck with reading William’s notes. I hope you get what you need from them. xx
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Kelley (77 comments.) said May 23, 2008, 10:21 pm:

Would it be possible to photocopy them? That way you can read and then go away and process and then come back as you need to.

Yay re the dentist.

And smootches my lovely.
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Betsy (86 comments.) said May 24, 2008, 6:43 am:

Hugs for you today.

Great news on the dentist!!
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Bettina (90 comments.) said May 24, 2008, 9:31 am:

I hope yesterday went well for you Tiff. hugs

Lovely about the dental nurses!
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Ectodermal Dysplasia Society (2 comments.) (subscribed) said May 24, 2008, 5:47 pm:

Am I correct in that you live in Australia? Do you know about the Ectodermal Dyplasia support group there they are called OzED. If you have problems locating them let me know and I will help. I run the Ectodermal Dysplasia Society in the Uk and we support all individuals with ED and have several families with Rapp-Hodgkins. Diana
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Childlife (122 comments.) said May 25, 2008, 2:27 pm:

So glad you’ve got a great dentist for the kids, Tiff — ours is great too and it makes such a HUGE difference!

I hope things went ok during your visit with William’s notes. I hope you were able to reach a certain level of peace through them, although I’m sure that it ached to read them. I understand a little of why you are drawn to them, they’re a connection to a time when he and a hope were yet joined in your heart. I understand that longing to preserve his memory and never forget. Thinking of you…
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Widdle Shamrock (43 comments.) said May 26, 2008, 4:32 pm:

HUGS HUGS HUGS

I can only re-iterate that you ask for a copy of you and William’s notes.

I have Finbar’s.

Much love.