Comments on: Dapsone is better than Prednisone because?

By: Snw

Snw — Thu, 15 May 2008 06:59:19 +0000

Hi, My name is Heather and I can say I too Hate Dapsone. I was diagnosed with Leukocytoclastic Vasculitis in July. Was first put on Colchicine, it had a nasty side effect and I asked to be switched over to something else not realizing what it would do to me. I started out at 25mg a day two weeks later i was at 50 mg then 2 weeks later at 75mg then by Christmas 2007 was at 100mg a day. In Jan because of increasing breakouts on my legs the Dr put me on 200mg of Dapsone a day. Superbowl Sunday I had the flu. March 6th I had CA-MRSA. ( I have had it 4 times in 2 months). I have had to be rushed (April 23rd) to the ER because my oxygen level was at 70%. I have had a cat scan done to check my lungs and at this point have been advised not to take the Dapsone for the same side effects you had found while researching the medication. The breakouts were originally on my legs and are now moving up to my arms and closer to the organs they are most worried about it getting on, I am on antibiotics, I am 10x more susceptible to getting sick than any of my co-workers because of this medication. I truly feel for your daughter and pray that she will be alright.

By: river

river — Thu, 27 Mar 2008 07:13:56 +0000

Good old-fashioned cod-liver oil is a natural immune booster and it helps with skin health too. Garlic is a natural antibiotic, taken in foods on a regular basis it helps keep infections away. There’s lots of other information out there.

By: Trish

Trish — Wed, 26 Mar 2008 14:18:16 +0000

Gosh Tiff - that is extreme ! My thoughts and prayers are with Ivy tonight. I hope she is okay.
I cannot imagine why they would change meds- it all seems a very hard call to say Dapsone is better.
WT heck !

By: Lilprecious

Lilprecious — Wed, 26 Mar 2008 11:48:09 +0000

Even though I come from a medical background and have supreme faith in the doctors and nurses who cared for me throughout my childhood - I’m will everyone who is suggesting you see a naturopath and see if you can treat Ivy with something that will be less toxic for her.

Good luck and know that are thoughts and prayers are always with you.

By: Veronica

Veronica — Wed, 26 Mar 2008 08:50:06 +0000

A fax?! A bloody fax?!

My god!

By: river

river — Wed, 26 Mar 2008 07:57:02 +0000

That bloody doctor again! I’m agreeing with Tracey and Frogpondsrock here. Seek out a naturopath and see if there are alternatives which will help Ivy so that she doesn’t take the chemical cocktails so beloved of “modern medicine”.
Really, there HAS to be a better way. That beautiful little girl shouldn’t be made sicker. What happened to the first rule of medicine? DO NO HARM. She’s a child, not a lab rat.

By: childlife

childlife — Wed, 26 Mar 2008 07:07:25 +0000

Arrrrggghhh! Fightin’ words! And he faxed them???? … Go get ‘im Tiff!

By: jeanie

jeanie — Wed, 26 Mar 2008 01:56:53 +0000

Oh, that doc certainly took the “Doctors as Gods” elective, rather than the more namby-pamby “Work with Patient’s Parents” module, didn’t he.

Yes, the internet offers the worst case scenario - but if the doctor isn’t able to give any other advice, who are you meant to turn to.

My goodness - blind faith? Please. This doc knows how pissed you are and takes the fax option? May I do some screaming for you?

By: frogpondsrock

frogpondsrock — Tue, 25 Mar 2008 23:20:28 +0000

Two close friends of mine have lupus. Friend A went with all the current medications to treat her lupus, some with horrendous side-effects.

Friend B.. sees her Gp and a naturpath and uses natural remedies as much as she can.

Friend A has had some pretty major complications from the toxic chemical cocktails her ’specialist’ prescribes. and is now having chemo injections once a week and is pretty sick..

Friend B has good days and bad days but is still fit and active..

both women are the same age, have similar lifestyles..

It is a hard call Tiff..

((((hugs)))))

By: Tracey

Tracey — Tue, 25 Mar 2008 22:25:07 +0000

You are never satisfied! Dear Lord save us! A fax is a form of contact, isn’t it? Well?

And I don’t know why you’re so worried about these side effects. You know they always put the worst-case scenario. It might never happen! Stop worrying. Be a good little patient and swallow your dose of bullshit, I mean medicine.

And please don’t lose faith in the great man. You know he only has Ivy’s best interests at heart! He has a perfect track record. This one little blip shouldn’t bother you so much.

Have you considered exploring alternative therapies?