Okay.
I’ve just spoken to the paed.
On Wednesday he phoned David and among other things, told him that Ivy’s colonoscopy showed a thing called melanosis coli.
Now, before you go and google that, you should know, that everything that comes up talks about laxative abuse.
Yep. Laxative abuse.
As you can imagine, for the last couple of days, all hell has broken out here.
I have cried a million tears. I have been angry and hurt because I thought that the paed knew me better than that and I thought my husband most certainly did.
It has been like a big slap in the face.
No one directly accused me but it was there.
Hanging in the air.
I guess though, when you can’t make a diagnosis, it’s easier to blame the mother.
I still feel sick just thinking about it.
Anyhow, I’ve just spoken to the paed, challenged him and told him the distress he has caused and he has discounted laxative abuse, right off the bat.
Thank God for small mercies.
Why he couldn’t tell David that is beyond me.
He said that it can be caused by a whole lot of other things and she would need to be tested for something in particular, that I can’t remember the name of right now because I was so cranky. Something granulosis.
We have started her on a gluten, wheat and lactose free diet. On Monday we are going to do a ‘big shop’ of all things free of wheat, gluten and lactose. At the moment it’s just Ivy but come Monday we will be eating…ummm, not sure what.
I need help for good recipes, so if anyone out there is eating gluten free, throw me your tips and ideas, okay?
We have had a really quiet day today because the erythromycin has been causing her to vomit and I am now worn out from being upset with the paed.
To leave you on a happy note here is a photo of my beautiful fairy princess.
Please excuse me for a while while I regain faith in myself, the trust of my family and tend to my little girl.
Oh sweetie! How dare they! Even if it was unspoken!
I’m all pissed off on your behalf now, because that is truly a shitty thing for anyone to even think.
(((hugs)))
Ivy looks gorgeous. I don’t think I have any gluten free recipes here, but I will have a hunt and see if I can come up with something
(((hugs))) sweety.. Slap the paed, Kick the door and Growl at the hubby…or is that growl at the paed and Slap the hubby.. Yep that sounds much better..
then lock yourself in the bathroom ALONE and have a bubble bath…
ok. I am off to check out my cook books for gluten free, lactose free yummy recipes..
cheers kim
xxx
Babe, Boo is gluten and milk free. He was soy free at one stage as well as on the Failsafe diet.
Email me with her fav foods and I will see if I can come up with an alternative.
In the meantime, Coles sausages are gluten and milk free, hans ham and hotdogs and smiths plain chips are too. Just so you have some treats.
Smootches.
oh what bullshit! How dare they!
hugs - that’s a rotten thing to have happen.
RPA hospital has a lot of info and books available with diet stuff and recipes.
I used info from them when I put my kids on elimination diets and the recipe books I got from them with friendly foods also contained gluten/wheat free/dairy free recipes. It would be worth seeing what they have available.
OMG - never in a million years would you do anything to your precious Ivy or any child -it is unthinkable he could even think it or consider mentioning it to David.
Dare he apologise for the distress he has caused you ?
Ivy is real Diva - adorable princess.
{Hugs}
Oh huge (hugs) for you and your gorgeous little princess…. you know when I first read ‘laxative abuse’ I immediately thought ‘well if she has had chronic diarrhoea for a long time surely it would give the same kind of symptoms?’ There is no way I can believe anyone would even think for a second that you would do anything even remotely suspect… surely surely the pead couldn’t have thought that? surely??
Please let me live in my naive little bubble…. there is room in here for you too if you ever need some time out! *hugs*
(((((((hugs)))))))
My mil has celiac disease, and she is on a gluten free diet. Let me see what books she has.
xoxo
There is a website called Celiac.com that has a great community and lots of help and recipes for gluten free eating. I’m sure you find something there.
When my 2 year old didn’t gain an ounce for 6 months they diagnosed her ‘failure to thrive’ and I could see the stares and looks as if I just wasn’t feeding her because all their tests turned up nothing. Worse feeling in the world.
I hope they sort all of this out soon.
sigh.
check out the links at:
http://graceunderautism.wordpress.com/
she was just asking about this last week and I think some of the people on her blogroll will have stuff.
Seriously? I am mad about this now. Why are they refusing to help?
Dude, I am COMING DOWN there to mess them up.
I hope that everything turns out o.k. I have been watching this for awhile, and I have for some time felt that her body is reacting to her diet. I hope and pray that the gluten free diet turns out to do the trick.
Your paed may be a putz, but no one out here believes you could possibly hurt her.
I always KNEW it was your fault! Didn’t I tell you…Munchausen’s all the way baby.
Did anybody actually think for one moment that this had anything to do with you? BASTARDS.
I don’t know what else to say. Just when you think things can’t possibly get any worse…
I think I have an inkling of how hurt and devastated you are at the moment, and I wish there was something I could do. I would even subject myself to Spotlight if I thought that would help. I’m free tomorrow…
Love ya, hang in there.
Glad to see you’re trying the gluten, wheat, lactose free at last. I’m sure this will help. Bookstores, libraries and the internet (websites and all your blogging friends) all of these will have many recipes to help you. Good luck. I hope this is the answer to Ivy’s troubles, then you can breathe a HUGE sigh of relief.
I am so so sorry. Sorry that you were accused of something like this. Sorry that Ivy has been going through all of this. Sorry that nothing has been found. Sorry that you’re hurting so. To be wrongly accused of something terrible to which you are not guilty causes the sickest, angriest feelings in the world.
I’m so sorry you’re going through this crap and I’m furious the idiot paed didn’t request a 2nd opinion on the results!
You poor little ladybug : ( I feel just awful that I was out of town while you were going through all this! You need ANYTHING from gluten-free land let me know : ) I put out an SOS for buckwheat pancakes for you and haven’t heard anything back yet. We can’t do buckwheat around here, so I don’t have much personal experience with it, but I’ll check for you. If you click the gluten-free tab at the top of my blog, there are a few recipes there - ones that even my husband likes : )
I haven’t moved my blog-roll all the way to my new blog, but I’ll do the gluten-free ones tonight - look for the subheading ‘Great Gluten-Free’ reading and those are some of the blogs with the best recipes and tips that I have found. And give a holler anytime you need anything!