Something positive and then a break… maybe.
I have nothing positive to write. Nothing funny or witty or knowledgable. It’s all negative, down in the dumps, depressing stuff.
Ivy’s bottom is all red and blistered again and her lip has a blister too. 24 hours after decreasing the prednisone.
I am feeling very low. I know I am writing the same stuff over and over and people are commenting less.
I think I am going to have a break from writing… maybe… or not, depending on how I feel tomorrow.
Before I do though, I just wanted to say thank you to Kim from Frog Ponds Rock. Even though I feel like the cra**iest mother of all time, she brought a smile to my face when she gave me this:
and she said I was a good Mum. In fact you all say that, so thank you. I mean it. All of your comments lift me up and help me through this. There are so many of you, I wish I could give it to all of you. Can I do that? I’m not sure if that is allowed in the blogoshere…will have to investigate.
I am going to give this to Guera from A Roaming Aussie Mum, a new blogging friend, who has told the story of her daughter who had severe talipes (clubfoot) and their journey,
Veronica, from Sleepless Nights because she always makes my day and brings a smile to my face,
Sue from Sueblimely, who has been quietly emailing me, letting me know I’m not alone.
Trish from My Little Drummer Boys - who is working her way through genetic issues with her boys but always finds time to lend her support to me.
Kelley from Magneto Bold Too, who battles with Boo’s Autism and still manages to keep her sense of humour,
Tracey from Why Bother who has been there through all of this journey, walking with me.
Kate from Picklebums, who has been through what Ivy is going through and has been wonderful, giving me information and telling her story,
My X - Box man, who is clearly struggling with this trying to conceive business but still finds the time to leave uplifting comments
and finally to my friend from In The Eyes of a Child, who is the strongest woman I know and has seen her daughter, Jacqui through so much.
I just want to mention River, who doesn’t have a blog but always has something kind to say.
Oh thankyou so much!
And oh sweety, (((hugs))) for you and Ivy. I am going to the post office today.
Feeling flat is perfectly natural considering what you and Ivy are going thru.
The roller coaster you’re on is a wild one.
Have a break, take a walk, take photos,play with the kids, ignore the blog.
We’ll be waiting here when you get back ((hugs)).
OH thanks so much for my little award… even though we are only fairly new blogging friends I think of you guys often and sort of feel like we are connected in a whole heap of different ways.
I think it is perfectly normal to have periods when you just want to crawl in a hole and not face the world… be gentle with yourself and remember to be proud of yourself too… you ARE a wonderful Mamma!
Thanks so much, Tiff! That is a lovely gesture. I have been meaning to comment for the last few days but have been flat out, but I have been thinking about you and poor Ivy’s bottom (you know what I mean!
) Absolutely you should take a break from the blog if you need it, sometimes its good to clear your head, but please don’t stop just because you think we don’t want to hear the same thing over and over. I often think about how you’re all doing and check for an update, so even if I’m not commenting, rest assured, I am reading! You shouldn’t feel like you always have to come up with something happy or funny. Use us to cheer you up or give support if you need!
And I second Kate’s comments - you are definitely a wonderful and inspiring Mum.
“Go placidly amid the noise & haste,& remember what peace there may be in silence……Speak your truth quietly & clearly; and listen to others, they too have their story…….Enjoy your achievements as well as your plans……..Be yourself……Neither be cynical about love; for in the face of all aridity & disenchantment it is as perennial as the grass. ……. Nuture strength of spirit to shield you in sudden misfortune. But do not distress yourself with imaginings. Many fears are born of fatigue & lonliness. Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe, no less than the trees & the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. Therefore be at peace……and whatever your labours & aspirations, in the noisy confusion of life, keep peace with your soul. With all it’s sham, drudgery & broken dreams, it is still a beautiful world. ………” These are not my words but I know you will recognise the quotation. As old as it is, there is a lot of truth & wisdom here. I KNOW how you are feeling, I wish I could relieve you & take the weight from your shoulders but I can’t do that. Just know that I love you so much & feel your torment. P.S. Ivy WILL get through all this, after all, she is YOUR daughter. xoxoxo Mum
Yep I second what your mum said..I am pleased that I made you smile.. WooHooo!!!!
((((hugs)))) Kim xxx
You’re just a poor, tired out mommy - that’s all. Not a thing wrong with you, darlin’ you’re human… imagine that! : ) Just hang on to that last little bit of rope with all your might. You can do this, I know it’s tough, but you can. Praying for you, sweetie *hugs*
(And thanks so much for the lovely award - a special one that I will treasure because of its meaning!)
Take all the time you need. Like Jayne said, we’ll be here when you get back.
Is prednisone the only choice? Is there any substitute that would work and hopefully without the roid rage? Prednisone is a steroid, yes? I’m off to google…….
Remember, when you get to the end of your rope, tie a knot so you don’t fall off.
Oh babe.
Keep writing. The comments don’t matter. Really. It is therapy. And you know we are here reading, some times there are no words to say to help.
And that said, commenting seems to be down all over the blog world. People are complaining EVERYWHERE!
Thanks for my bling! Smootches and <3
Oh hon, I don’t feel like you are being negative. You’re in the middle of something at the moment thats all. You are doing fantastically at dealing with even when you feel down. We can’t encourage you if you don’t keep writing.
Hang in there, you are doing a terrific job in difficult circumstances and you are a great mum even when you don’t feel liek you are.
Thank you Tiff, a walking talking heart as always. When I get myself together a bit I’ll put this up on my blog. Thank you again.
As for taking a break, go ahead, there are more important things in life, and you’ve got about a dozen of them running around you! I look forward to reading (&writing) more when there’s light at the end of our respective north and south hemispherical tunnels.
Thank you so much, Tiff. No, you are not alone. Just looking at the comments shows there are many that understand what you are going through.
Feeling down is an indication of how much you care , Tiff. Sounds very normal to me although I know you do not want to be normal in this way.
Even if you decide not to blog for a while, please keep in touch - seek support anywhere you can - try to get some respite care.
As for the award - I break the “rules” all the time