Here comes the sun…

A song of hope on day 5 of treatment.
I think the Prednisone is working! I’ve updated the photos if you want to look.

Weekly Winners

Here are this weeks weekly winners. This great idea came from Sarcastic Mom. Why don’t you join in?
 
Maddy Rose
Noah, after playing ‘doctors’ with the big kids.

Ivy and Noah having a tea party (Noah likes the sugar pot the best).

Summer and Linus don’t agree.
Yard feet.
  
When Ivy girl was in hospital after the febrile convulsions, she […]

Broken thoughts of a SAHM… Sunday arvo blues.

I’ve been reading alot of medical and nursing blogs lately. Mostly because I miss midwifery. Partly because I forget who I am sometimes. I feel as though I have lost my identity.
Don’t get me wrong, I love being at home with my children, I do.
It’s  just…
David, who I love with all my heart, is not […]

Mmmm… Patrick… I mean.. Enchanted, quite a good movie.

What do you do when life gets too much?
Why, you take your girls to the movies to see Enchanted, that’s what!
Mums, this is seriously one to leave your husbands at home, with the toddlers. Use the excuse that it is a chick flick/children’s movie and they will be begging off anyway.
While the children are caught up […]

Photo link…

Here is a link to photos of Ivy’s Pemphigus.
Please, only look if you are truly interested. I would be very sad to get comments about how gross it is. I know already.
This is as much for me as for anybody.
I will be putting daily updates in as we continue with the prednisone.

Tests and treatment.

I am tired. Exhausted in fact.
Yesterday was a colossal one.
A day of doctors, tests, doctors, results, more doctors, long drives, long, neuron pathway altering thought processes, tears, heated discussions, doctors and finally treatment commencement. Did I mention doctors?
You know it’s been a big day when you cry in front of a doctor, who doesn’t know you.
Now […]

Escape with me.

Come with me, his eyes said. I will help you. I will allow you escape from this. I will open your mind and your heart to a beauty that you have never known.
I know it hasn’t been great. I know that you feel small, ugly, worthless.
You have lived your life in fear but now it […]

Well, blow me down!

Now, don’t pass out.
He called back.
You know,
the paed!
He had done his research, talked to  Ivy’s now four doctor team and had some suggestions.
No! Don’t faint!
There’s more!
We discussed Ivy’s pain at length and how it was getting worse and why we were holding off when the treatment was the same, no matter the outcome of the blood tests.
I […]

Wordless Wednesday - Bright Spark

Even when times are tough there is always some magic in each day.
See more Wordless Wednesday here

Shameless cranky.

We went to the paed.
Ivy and I, on two hours sleep.
I was already cranky before I got there. Bad mooded. Walking the biartch. Post PMS pms. Call it what you will.
Ivy’s bottom was in the process of blistering up again and there was not a thing I could do to stop it.
Applying the creams does […]