Home


About


William


Ivy and Noah


Pemphigus


Donate Blood


Dear Donor


Reviews by Tiff

Subscribe Follow me on Twitter


AMB Badge


FYBF


This blog designed by Rah!Creative

Archives
Categories

Archive for December 16, 2007

Small people.

We phoned the paeds rooms to be told once again, in a mocking tone, that there was absolutely NO WAY that we could see him. he was booked out until September…2010! How stupid are we to think that we might actually be able to get in to see the only doctor who knows anything about Ivy?

When David (phone phobia, friends, remember?) mentioned that the dermatologist asked us to keep in close contact with the paed the receptionist snarled… "well, I think you’ve got that covered".

I have to say that when David relayed this to me, I was upset, no, I still am upset but my angry tears have stopped. For now.

I feel guilty for interrupting their more important lives with my niggly little problems…say, a child who won’t get better.

I feel hurt knowing that they think we are pains in the behind.

I feel bad for feeling those things because, really, I shouldn’t.

As David says, it shouldn’t matter what the small minded people think. It should only matter that we do what we have to do to make Ivy right. It’s true.

I can’t help feeling awful though. Like I have broken some rule that clients will not disturb their doctors. Ever.

I admit, the last few months have been full on and we have needed to call constantly for more scripts, to see what to do next, to throw ideas around. I know they are all over it. I can hear it in their voices but do they think we are having the time of our lives? Do they think we are calling just because we are lonely out here in the boonies?

I would love to ask them. I would like to know, would they not do the same for their babies? If they had a child who was chronically ill with SOMETHING that no one can adequately diagnose, wouldn’t they be worried? If their toddler cried all day long, had discharging ears, blistered bottom, a wet chest, would they not want to do ANYTHING they could to help that  little child?

I think they would.

So, why does the receptionist judge us?

Why does it hurt so much that she does?

I hate this.

Ivy update, solicitor update.

It’s been a very big week in our house.

Ivy has been incredibly unwell. We went to see a dermatologist about the blistering on her bottom and were sent away with more creams, more blood tests and Ivy, who was still so sick and weak that she could no longer hold her own bottle.

We went to have the blood tests but the pathologist refused to do them because a) he couldn’t understand the doctor’s writing and b) they couldn’t do the third blood test on Fridays.

Huh? This is at our major tertiary hospital and the pathology unit can’t perform a test on Fridays because????

So we took our sick little girl home and I proceeded to break the doctor’s handwriting down. See? Being a nurse comes in handy sometimes!

He ordered

Serum zinc levels

Biotin Carboxylase levels

Essential fatty acid levels.

While this is interesting information, all it does is open the gaping wound of nurse/control freak need for medical discription and stress with the aquired reading.

In the meantime, we have been putting the creams on and encouraging the girl to eat and her bottom is looking good and she has started to keep something down, other than Cruskits. This morning I’m going to try Weet Bix.

Last week we went to the solicitor in regards to the ESM’s request that I sign everything over to her. I wanted to thank every single one of you who commented and gave me advice and told stories of similar encounter’s. It was so good to read those and helped me get some perspective.

Basically, you were all right and I haven’t signed anything and won’t be in the near future.

The solicitor thinks we have a case.

In the madhouse…

Maddy: Who won the last America’s Next Top Model?

Lily: Wasn’t it Kylie Booby? (Australian Princess winner)

Immy: (Indignant) No! It was Nicole!

Maddy: Nicole who?

AJ: Nicole Kidman! Der – er!

 

Umm… I think they have their TV stars a bit mixed up…

***********************************************************

Noah having a tanty, wanting to go in the car…

N: Want to go in car!

David, pointing to Noah’s ride in car: there’s Noah’s car, do you want to go in there?

N: No! That’s not No – No’s! Want to go Daddy’s car!

David: What about the bus?

N: No! That’s Mummy’s, want to go No – No’s car!

David moves to put Noah in his push along car…

N: No! (get’s down from David’s arms) This one! (Points to David’s car)

David: I thought that was Daddy’s car.

N: Daddy’s car IS No – No’s car!

David learns the toddler property laws apply to vehicle ownership as well.